Jaxson had his ENT appointment today.The doctor said yes he needs his adenoids out soon.His office will call next week with a scheduled surgery day.He was not able to see his tonsils the stinker clinched his teeth together and would not let doc see.He said he would look at them during surgery to see if they also need to be taken out or to leave them alone.
He also said this surgery will take place at stormont vail in Topeka because they do kids there.He also said Jaxson will stay overnight due to his special needs.I am ready for this to get here.He will feel so much better once they are out.The poor baby has such a rough time.
This evening we were setting outside on the deck and i was holding Jax!I heard him laugh outloud for the first time it was just soo cute.I hope to hear many many more laughs from him.He is such a sweet little man.I bought him a new toy and it sings nursery songs.One of them is Hickory dickory dock he LOVES it and smiles really big when its playing.He still dont sleep at night..I have gotten him up early in morning and dont let him nap and he STILL stays up allnight.I am exhausted but know it will get better soon.I love this little man i am so blessed i am his mommy.
Friday, April 23, 2010
Thursday, April 22, 2010
Wednesday, April 21, 2010
Tuesday, April 20, 2010
Going to get extremely busy!
Jaxson's Nuerologist was on it.I got a call even before i got home with a scheduled appointment for Jaxson's cat scan and EEG.Today the hospital social worker called and is going to get us in all the right programs and such in case we need equipment our insurance won't pay for.Then the phone rang again and it was international adoption clinic and we have an upcoming appointment scheduled with them.I hung up to the phone ringing again this time it was Rehab to schedule an appointment too.I have all these appointments wrote in my calender in my purse to keep them straight.Friday he sees the ENT i am excited about this one my precious baby is miserable with those adenoids. Including waking up today with stuffy nose and green goo coming out his nose.He slept allot today which tells me he truly does not feel well.
Tomorrow i get to schedule Landens yearly Follow up appointments with Nuero and Opthamolgist and also schedule Rebecca and myself for dental appointments.It going to be hectic here but so worth it.
You can tell it is the end of the year.. Landen is on burn out mode with school and fights to get ready in the mornings the stinker.Not much longer to go and he can play all summer.Landen is still trying hard to adjust to Jaxson.It is better he is so cute.. he will go to Jax and kiss him and rub his head and hand him a toy.He still gets jealous though when i am holding Jax and will grunt and growl at me.I give him extra Mama time in the evenings.. he likes me to push him on the swing and blow bubbles with him.
Now to get Jaxson's nights and days straightened out.
Tomorrow i get to schedule Landens yearly Follow up appointments with Nuero and Opthamolgist and also schedule Rebecca and myself for dental appointments.It going to be hectic here but so worth it.
You can tell it is the end of the year.. Landen is on burn out mode with school and fights to get ready in the mornings the stinker.Not much longer to go and he can play all summer.Landen is still trying hard to adjust to Jaxson.It is better he is so cute.. he will go to Jax and kiss him and rub his head and hand him a toy.He still gets jealous though when i am holding Jax and will grunt and growl at me.I give him extra Mama time in the evenings.. he likes me to push him on the swing and blow bubbles with him.
Now to get Jaxson's nights and days straightened out.
Monday, April 19, 2010
JAXSON,S NUROLOGIST APPOINTMENT.
Jaxson now has a seizure medicine to control his seizures.He will be getting a cat scan and and EEG and xrays of his hips.I have noticed his hips are a little out of sorts and doc wants this checked.He is also getting Jax set up with rehab so that he can get the braces he needs.He also having social worker call to guide us on places to register Him in to help with his cp and such.
Jaxson will be getting a blood draw in a couple weeks to check his levels and to make sure his seizure medicine is working.Oh Jaxson is also Microcephalic just like Landen.
The only thing i do NOT agree with that the doc said today was Jaxson will not progress in learning then where he is now.I DO NOT believe this.I have already seen him progress in the short time he has been with us.This same thing was said about Landen from his Nuero and he has amazed his nuero so much.Never say never because this MAMA knows Jaxson will progress.Wait a year and let doc see him and then tell me that.
We have no more appointments until Friday when he sees the ENT.Next week we have therapy and he has doc appointment to get all his shots caught up poor baby.I hope to get good news at ENT office like a scheduled surgery date to get his adenoids out.
Jaxson will be getting a blood draw in a couple weeks to check his levels and to make sure his seizure medicine is working.Oh Jaxson is also Microcephalic just like Landen.
The only thing i do NOT agree with that the doc said today was Jaxson will not progress in learning then where he is now.I DO NOT believe this.I have already seen him progress in the short time he has been with us.This same thing was said about Landen from his Nuero and he has amazed his nuero so much.Never say never because this MAMA knows Jaxson will progress.Wait a year and let doc see him and then tell me that.
We have no more appointments until Friday when he sees the ENT.Next week we have therapy and he has doc appointment to get all his shots caught up poor baby.I hope to get good news at ENT office like a scheduled surgery date to get his adenoids out.
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