A beautiful face like this?I love this sweet little man so so much!
Thursday, December 9, 2010
ONE OF THEM DAYS!
Where i am frustrated with Insurance companies and supply companies and doctors.It like everything gets on track and then something jumps off the track causing me frustration.Today is one of them when the surgeons office called me.Jaxson has been throwing up a whole feeding at least once a day.Almost 2 months ago we seen the surgeon and told her about it.She sent him for an upper gi to make sure his Nissan was still intact.Everything looked great and all is still good.But the throwing up remains.The sleep doc emailed to tell them of our issue they call today.I tell them i know its reflux as he is doing it during his feed or withing the hour after his feed.They want to do another UPPER G.I. I am frustrated i am telling them what it is just prescribe a med to try and i bet this will stop.
Then the lovely insurance...Somehow his policy has a pre existing clause!It was put in wrong when we put him on insurance and I am working to get this fixed.Policy is..a child adopted does not fall under pre existing as its like the birth of a child.So why are we having issues?
The medical supply is another thorn in my side.The surgeon gave them a script to order the Mic_key and polymem.They call to say they don't supply the mic_keys and they could not read the script for the polymem.I handle these calls and my husband took the call i could not call them back.The surgeon's office is calling apria because they said yes they do supply Mic_keys they have lots of patients that get them from there.Its one thing after another.
I get so overwhelmed as these are things we should not have to fight so hard for.It lots of calls extra testing and appointments that are UN necessary.Its just one of them days!
Then the lovely insurance...Somehow his policy has a pre existing clause!It was put in wrong when we put him on insurance and I am working to get this fixed.Policy is..a child adopted does not fall under pre existing as its like the birth of a child.So why are we having issues?
The medical supply is another thorn in my side.The surgeon gave them a script to order the Mic_key and polymem.They call to say they don't supply the mic_keys and they could not read the script for the polymem.I handle these calls and my husband took the call i could not call them back.The surgeon's office is calling apria because they said yes they do supply Mic_keys they have lots of patients that get them from there.Its one thing after another.
I get so overwhelmed as these are things we should not have to fight so hard for.It lots of calls extra testing and appointments that are UN necessary.Its just one of them days!
Wednesday, December 8, 2010
A NEW MEMBER OF OUR FAMILY!
This is Rudy!My husband got him for me for Christmas!I have been asking for a pug ever since our Bella (Bella was a pug also)passed away.So for Christmas i got Rudy.Rudy will not join us here at home for another week as he is not quite ready to leave his mommies side.I am thrilled and cant wait to bring him home.I picked the name Rudy for him i took one look at him and the name stuck.I hope to get better pictures once Rudy comes home.This was taken on my camera phone.Is he not the cutest?Tuesday, December 7, 2010
Depressing appointment!
Jax had his sleep consult today!They are positive Jaxson has some sleep apnea.She noticed how his breaths heavy and his chest wall really works hard to breath.The snoring and the constant raspy sound.She is positive he has pockets in his lung that is collapsing.He got an xray done of his lungs.She set up up a sleep study but we don't have the date yet.He will also be seeing pulmonary for his asthma she thinks albuteral is not the answer.Also they are FINALLY trying to get a script for reflux..He is averaging vomiting a feed a day.I am Praying that a cpap will work for Jax and not the trach they want to do.I told her we want to weigh and try all options before moving in for a trach.She did agree with this.She also said Pulmonary wants to see him before they script a med to help control his saliva.
Jaxson has scoliosis Rehab had told us it is possible he has it but the doctor today confirmed it.I knew he did as his spine is bent to the side and cause a knot on chest wall.This is all coming together now.Also Jax will be seeing a new set of docs as his primary doc.Childrens mercy has a clinic called the medically complex clinic and he will be going there for his care.Yes its a long drive for us but all interest in my child it is for the very best for him to see these specialist.
I called the company today on Jaxson's wheelchair!It has been way over 3 months and the chair is ready.The insurance company authorized to pay for it and now are holding it up.The company that made the wheel chair submitted for it in October and have not heard nothing from Insurance company.I will be calling the insurance company tomorrow.I am upset they authorize these things and then don't follow through.Jaxson really needs this wheelchair.I cant put him in school without it.Also his stroller is breaking and to be honest i just cant position him right in the stroller.We were really hoping to have the wheel chair before Christmas.
Our insurance has been really good!There is only 2 things we have struggled to get paid..His hospital stay which was authorized and still is not paid.We got the run around on this..First the ins.company wanted a itemized bill i made the call and they received it.Then they tried to pull pre existing conditions!I had them there its illegal and they could not do it and know it.Now they are claiming they are changing their Policy.This bill is from July when Jax got his Mic_key button.Now the wheelchair..which was also pre approved.Hmm isn't it funny both of these are in the double digits and they are refusing to pay but pay for all his other medical stuff?
The kids and husband and I have never had a problem with our insurance covering us.Just certain things on Jax.. I don't understand especially considering the pre approval.Please say a prayer for our Jaxson i am not ready for a trach and pray we can get his Much need wheelchair very soon.
Jaxson has scoliosis Rehab had told us it is possible he has it but the doctor today confirmed it.I knew he did as his spine is bent to the side and cause a knot on chest wall.This is all coming together now.Also Jax will be seeing a new set of docs as his primary doc.Childrens mercy has a clinic called the medically complex clinic and he will be going there for his care.Yes its a long drive for us but all interest in my child it is for the very best for him to see these specialist.
I called the company today on Jaxson's wheelchair!It has been way over 3 months and the chair is ready.The insurance company authorized to pay for it and now are holding it up.The company that made the wheel chair submitted for it in October and have not heard nothing from Insurance company.I will be calling the insurance company tomorrow.I am upset they authorize these things and then don't follow through.Jaxson really needs this wheelchair.I cant put him in school without it.Also his stroller is breaking and to be honest i just cant position him right in the stroller.We were really hoping to have the wheel chair before Christmas.
Our insurance has been really good!There is only 2 things we have struggled to get paid..His hospital stay which was authorized and still is not paid.We got the run around on this..First the ins.company wanted a itemized bill i made the call and they received it.Then they tried to pull pre existing conditions!I had them there its illegal and they could not do it and know it.Now they are claiming they are changing their Policy.This bill is from July when Jax got his Mic_key button.Now the wheelchair..which was also pre approved.Hmm isn't it funny both of these are in the double digits and they are refusing to pay but pay for all his other medical stuff?
The kids and husband and I have never had a problem with our insurance covering us.Just certain things on Jax.. I don't understand especially considering the pre approval.Please say a prayer for our Jaxson i am not ready for a trach and pray we can get his Much need wheelchair very soon.
Monday, December 6, 2010
MY TEST RESULTS!FAMILY UPDATES!
The Doctor called and its good news!No mycentic cyst YAY!I have a kidney stone that has not passed causing some kidney pain so i am drinking tons of water to pass it.I am happy as i have nothing that could medically be bad.This is a big relief!
All is well at home.Landen is changing in leaps and bounds!He is talking more and learning to solve problems on his own.It is time to try and potty train him again.We have worked hard on it and the past month i gave up.Well the newest thing he comes and gets me and says...change my poo poo .I told him if you can tell me this you can go on the potty.
Jaxson has had some slide backs poor baby.He has not felt good all weekend.He gets cold so easy poor baby is not used to this cold Kansas weather.His legs are cramping more and more and he is irritable.We continue with sleep issues because of the cramping.I have given melatonin and it does not even help.So Michael and I work in shifts for the nights he wont go to bed and is uncomfortable.At least we both get some sleep and are able to function with the other kids.
Rebecca She is blossoming so much.She is into poetry and History.She wants to learn all about different countries she is really focused on learning about Egypt.She likes to draw and now want to start painting.I made sure she got art supplies for Christmas this year.She is an amazing child and i have been graced to be her mother.
Linda is so excited about graduating high school this year!She wants to attend a college in Topeka next year which is great.She wont be far from home so she can come and visit often.She loves the boys so much and is such a great helper.She wants to be a special education teacher and would be wonderful at this.She helps with a high school boy at her school who is allot like our Landen and the teachers and principle rave at how awesome she is with him.
My 3 grown kids are doing well..Hannah passed her finals that had to be done before Christmas break.William is still struggling to find work.Brian is working for his Dad to make money for Now!He has been applying for other jobs as he is saving for his future wedding to Brittney.I keep telling them both they are young and have lots of time before marriage.
All is well at home.Landen is changing in leaps and bounds!He is talking more and learning to solve problems on his own.It is time to try and potty train him again.We have worked hard on it and the past month i gave up.Well the newest thing he comes and gets me and says...change my poo poo .I told him if you can tell me this you can go on the potty.
Jaxson has had some slide backs poor baby.He has not felt good all weekend.He gets cold so easy poor baby is not used to this cold Kansas weather.His legs are cramping more and more and he is irritable.We continue with sleep issues because of the cramping.I have given melatonin and it does not even help.So Michael and I work in shifts for the nights he wont go to bed and is uncomfortable.At least we both get some sleep and are able to function with the other kids.
Rebecca She is blossoming so much.She is into poetry and History.She wants to learn all about different countries she is really focused on learning about Egypt.She likes to draw and now want to start painting.I made sure she got art supplies for Christmas this year.She is an amazing child and i have been graced to be her mother.
Linda is so excited about graduating high school this year!She wants to attend a college in Topeka next year which is great.She wont be far from home so she can come and visit often.She loves the boys so much and is such a great helper.She wants to be a special education teacher and would be wonderful at this.She helps with a high school boy at her school who is allot like our Landen and the teachers and principle rave at how awesome she is with him.
My 3 grown kids are doing well..Hannah passed her finals that had to be done before Christmas break.William is still struggling to find work.Brian is working for his Dad to make money for Now!He has been applying for other jobs as he is saving for his future wedding to Brittney.I keep telling them both they are young and have lots of time before marriage.
Saturday, December 4, 2010
Thursday, December 2, 2010
NICE DAY!
The weather was beautiful today..Did not need a winter coat a jacket worked perfect.Because it has been so cold the last few days we have kept Jaxson in the house he does not like the cold and shivers.Today being nice Michael and Jax and I ventured out to do some Christmas shopping.I was pushing Jax in his stroller in walmart we were waiting in the check out line when one of walmart employees started laughing and said..your baby just peed on the floor.I had just changed his diaper right before going to walmart .So we checked out and grabbed the diaper bag and a change of clothes(i keep 2 sets in the diaper bag).I got him changed and it was time for him to eat.We hooked him up to a feed and we were hungry so we had lunch at Pizza hut.After we went to a couple other places to eat and then headed home.We did not get allot of shopping done but it was sure nice just to get out of the house.We all needed it.
Tomorrow morning i get my ct scan done.I am praying for good results on this.I don't want it to be a cyst!
Tomorrow morning i get my ct scan done.I am praying for good results on this.I don't want it to be a cyst!
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