I am home for the night!

Today the ENT came in and we discussed a trach for Jax.Jax will have surgery tomorrow or Wednesday still waiting to hear when to get the trach placed.This is not an option he quits breathing for a few seconds which is apnea.He struggles and works so hard for every breath that he has become tachycardia.He does have Pneumonia and is on antibiotic.I was upset when they told me our sweet baby will not be out of hospital for Christmas.I am really bummed about this being his first Christmas home and all.
In the long run this is for the best for Jaxson's health.It will be nice to see him feel better.I will go to children's when he has surgery and then on Christmas day i will spend part of the day home with the kids and part of the day with Jaxson.Michael is with him and is refusing to leave until Jax is released.I am going to try to make him come home after a couple days.The hospital can wear you out quick so we need to share this.It is hard on me being away from Jax.But i know i am needed here too.Landen is a mommies boy and it is extremely hard on him when i am not here.

Jax needs Prayers!

Saturday Jax had a seizure at 6 pm,It was a grand maul and the first one he has had in like 6 months.About 1 a.m he had another and this one was bad lasting longer and leaving Jax irritable and not feeling well.I went with my mommy instincts and headed to the ER.Once there Jax had another Grand maul so the doctor gave him ativan!This did not work and he had 3 more seizures back to back he was given dilantin which finally stopped the seizures.So he was ambulance to children's mercy hospital.Jax went from seizures to major irritability.His trachea has decided to collapse or so they thought.He was intimated and put on a ventilator.He has now been weaned off and is just getting oxygen now.His sats are staying great and his blood gases were fine.But he still struggles with some type of obstruction in his airway .He works hard to breath but is maintaining.So i set in Picu worried sick about my little man and just wish they could fix all his ailments.
Please keep Jaxson in your thoughts and prayers!I am not sure what they are planning on doing to help him tomorrow!I have had a couple struggles with the docs already!Please pray for my sweet beautiful boy to get better and get the help he so deserves.

NOT MUCH GOING ON HERE!

It has been a normal week of appointments and holiday preparations around here.I stayed up last night and wrapped a ton of presents.I am happy to report i am done shopping now.Michael has a couple presents he needs to get Otherwise we are done.

Cloth diapering...I decided to go exclusively with them.I have tried every disposable for night time and he pees through them all.If i add inserts to the cloth he does not pee through.I was online last night and found some diapers that had really good feedback on them so i bought 4 of them to try.They are super cute too!One is camo..one has jungle animals ..One is orange soccer ball and the other is green soccer ball.If these are good diapers i want to go back and buy the adorable zebra print one.

I was so excited as i thought i had a part time job.It will not be happening i didn't even get to the interview when a call came in saying they changed their mind.I do Patient care attendant where the person i take care of is the person who would hire me.So i start at ground zero for a job.I will wait to get through the holidays then really start looking again after the kids holiday break is over and they are back to school.

That's about it around here !Its been a busy yet Mellow week mixed in one..Kind of odd for the Miller household HA HA.

Another Christmas cutie pic!

TOO CUTE!

INSURANCE WOES ARE OVER!

A woman from our insurance company called today to tell me that the pre existing clause on Jaxson has been removed .It was a glitch on their end and she called excited to tell me it was fixed and all the claims that were waiting are being taken care of today.Even his wheelchair claim..She even called the company that built his wheel chair to Inform them of this.I am just thrilled.All the stress is now gone.
The Supplier for the Mic_key issue and polymem is also fixed.I also got a call the Rudy our pug puppy is ready to come home.I will pick him up on Monday is all goes well.I am so happy that all these issues are fixed and i can relax now!
This will be a Amazing super weekend we have some wonderful visitors coming to see us.I am so excited yet a tiny bit nervous.

DIAPERS!

I use cloth diapers for Jaxson here at home!When we are at appointments or out of the house i use disposable.I am considering going full time cloth.I have tried every disposable diaper on the market and he pees right through them.Cloth he hardly pees out of.I change him often in both disposable and cloth and he still pees the disposables.I do put a disposable on at night and i have put cloth.Either way works and either way at night he pees out.
I have to admit though i have saved a ton with the cloth diapering and i have not minded it at all.I buy 1 case of disposable diapers and they last forever!I have really saved and am glad i went with cloth diapering him.