MANIC MONDAY!

That is how it started today.I was cleaning house and my Vacuum decided it did not want to work.So i worked on it and got the clog of i dont know what out of it and it is working fine now.Then UPS delivers Jaxson's Trach supplies and i was ticked off they sent us the wrong HME'S(humidifying moisture exchange)These ones were for a vent child and they do not stay on.They also sent no saline bullets,no trach cleaning kits and one oxi tip(suppose to be 4 all together).I was mad it would be nice for once if i did not have to call them and argue with them.
We had a horrible leak in our small bathroom.The floor has been soaked and we did not know where it was coming from.My dad came over and found it and him and Michael fixed it.I dont know what happend after it was done.My dad lost his balance and fell in Jaxson's bedroom.We all jump up and run he was on his knees holding his chest which scared me.My dad has a bad heart so first thing i thought was a heart attack.He said his heart was fine but he did hurt his knee from the fall.I hope he is not to sore or in much pain tomorrow.
Tomorrow i am heading to town to finish getting some things for Jaxson's Birthday party this weekend.I am so excited to finally have him with us on his birthday.

SIMPLY ADORABLE!

JAX DOCTOR VISIT!

The pediatrician Jax has is awesome!First off chunky monkey weighed in at 34 lbs today he has gained 2 pounds in 1 month.Jax does not have pnuemonia !I am grateful as we were worried this is what he had.The doc switched his asthma med back to pulmicort its a prevenetive instead of albuteral being it opens up the lungs.He is on amoxocillin for his cold ewy yuck he has going.I also talked to the doctor about the buckets of drool we are having and how he saturates his trach straps and we are doing alot of extra trach changes.So he also gave a script for robinal which should help with the drool.Over all our beautiful boy is doing very well.

LANDEN!

Landen has made progress in leaps and bounds!He only talks when he wants to but it is getting better everyday.I never thought this child of mine would talk.He is and doing it well.Sometimes he will answer us when asked something or sometimes he wont.For Instance..Last saturday we orderd pizza..I asked him you want Pizza for supper?His answer Oh that sounds good LOL.He is so funny and smiley!I have been Blessed so much by being his Mommy.Landen Is learning and went way beyond any of his doctors expectations of goals they had for him.He is smart,funny and full of life.

TRACH TIES!

This should be interesting...Michael has decided he is going to make trach ties for Jax!He has bought the material and the velcro.I cant wait to see if they turn out or not.I was laughing as the material he bought is Zebra print LOL.It will match his hearing aides.I will post a pic when he makes one to show you what they will look like.

DOC CALLED!

I love Jaxson's new Doctor...He was off today so when i called they paged him and he called me himself here at home.I told him what is going on with Jax.He has me giving Jax nebulizer treatments every 4 hrs.He thinks he may have a viral or bacterial infection .If Jax is not better in 24 hrs he said to call and get a appointment with him for Friday.Jax has slept most of the day today so i know my boy is really sick.He cried during his trach change he cries during diaper changed he is down right miserable.
Yesterday he vomited a ton of phlegm...I went to throw the puke clothes in the washer to discover the pipes have froze.So i am using disposable diapers as i have no way to wash his cloth diapers right now.We have water everywhere else just not the wash machine.So be the life of this frigid cold Kansas weather.Its minus 10 tonight and tomorrow will be no warmer.

ROUGH NIGHT

Jaxson had a rough night.His secretions were thick yesterday and i had to use saline bullets to suction him.Last night when i got him into bed his o2 Sat's were dropping.I would put a little saline in and suction which seem to bring them back up.He just had a hard time all night long.This morning wow were they ever thick.He is on the humidifier which is to help with keeping his secretions not so thick.I am sure he is trying to come down sick.The highways are not the best right now i am hoping he will be OK for a day or two until i can get him in to see his pediatrician.Please pray our Jaxson gets better today and is not so crabby and does not struggle today until we can get to the peds office.