A GREAT DAY!

I have been looking for a pack and play for Jaxson.We are going to be staying in a hotel and need a place for Jax to sleep.The playpen i got just wont work as its flat but bulky and very hard to pack in the car where this one is in a bag.I stopped at the thrift store when i got off work !I found a brand new one still in the box and i paid 10.00 for it.Pac and plays are not cheap.The good thing is i can use it also for my grandbaby that is due in september.Yes i am going to be a grandma i have not shared out of respect of my son and his fiancee asked me to wait to say anything.

Then i got home to find a couple waiting outside for me and we sold our camper today!I am going to miss camping so much as we did it alot in the summer time.But with Jax being on a night machine and a sat monitor at night and having a trach it just isnt happening anymore!

I have had a hard time getting a bath chair for my Jaxson!They are way expensive and i just cant afford to buy one outright and our insurance does not pay for them.I am on a group for equipment that people have and dont need anymore and will sell and a woman seen my post that i was looking for a bath chair.I got him one for 100.00.This is CHEAP as they are so expensive.I also asked for over the head bibs..Near impossible to find and a nice woman told me her friend makes them and she could get them for me for 4.00 each!That is cheap for homemade bibs..One lady wanted 12.00 each for hers.I am thankful i have this group and thay all are so helpful!

I DONT LIKE RUN AROUNDS!

I have never had an issue getting an appointment for Jax!Today was aweful....Jax has a psuedo infection he has had it before i know the symptoms and he needs the medicine to get rid of it.Nope not so easy...I have to talk to MANY and I MEAN many nurses and receptionist before we can even get an appointment or see if they could script what he needs.Then to make me even more infuriated he cant see his own Doctor!I dont like this at all.I like one doctor we know and who knows Jax i dont like being put with someone who does not really know my child.It irritates me and i am just MAD about it.But in order to get this Medicine he needs to kill this nasty bug he has i have to do it.The whole thing of switching docs in the first place was a personal reason and sticking with that doctor only.I will do this once but after this he will see ONLY his Doc !I wont do this mess ever again.
I lost doc personal email and have to get it back.I correspond with him this way if i had it i sure would not have spent 3 hours back and forth on the phone getting the run around and and appointment with someone I nor my son know.

SIMPLE PLEASURES!

Yup that's me!I have the Ladies wrapped around my adorable little fingers!

LOVE my swing!

This water is warmer then my pools water!I'm going to set a spell in my baby brothers pool!

AWE!Feels great to stretch out on the floor and bat at my toys!This is the Life!

I love to swing !My mommy sure knows how to push me way up to the sky!

Oh this water is nice and warm!I love this swimming stuff!

This water squirt er thing sure is fun!

SWIMMING!

Jax loves the water..Because of his trach he cant be in alot of water!So the itty bitty pool with just enough to cool him down worked perfect!Landens pool is bigger and perfect for him.Although Landen likes Jax better because the water was warmer.

I AM SO PROUD!

This is something we were told Jax would never do!It took him a long time to even touch a toy.I love this video because he looks like he is studying it and thinking about it before he grabs at it.He loves his toys and tries hard to grab at them.I am hoping we can get him setting up straight enough to grab them from the tray on his wheelchair.Right now we cant get him setting upright straight enough because of his hip.Soon though he will!The hip surgery is not going to wait until he is 21 it causes to many issues so we are praying the ortho doc will agree to fix it sooner!

STUFF!

Jaxson is much much better!He still has a dry cough and crys when we suction but overall he is much much better.We are getting smiles out of him.He is such a little Lovey!Yesterday I got Landen brand new water spray thing out and hooked it up to the water hose.He had a blast and giggled and clapped and just had a great time.He is so darn cute and he so loves water my little water bug!
Yesterday evening the kids and Michael and I got bored and had to get out of the house.It was driving us crazy.So we piled in the car and took the kids to dairy queen for supper and ice cream.Then we went to the red box and rented some movies.We had a nice time and it was nice to get out for a bit.
Today i am cleaning house and later we have a BBQ to go to at my sister Lori's house.It is nice to have something to do on the weekends.The same hum drum staying home is getting to us.Our schedule will be busy soon this month and next with family reunions and weddings.We are also planning a week trip to Wichita to visit Michael's family there.That will be a nice getaway for us.

JAXSON IS SICK!

A couple days ago Jax started getting a runny nose!I thought for sure it was his allergies so i gave him clairiton!Come Wednesday night he was miserable..coughing and crying chest congestion..suction him and he cried.He just cried from the minute he woke up and was miserable.I went to work yesterday and Michael kept jax.When i got home he said you better call his pediatrician so i did.The doctor said take him to E.R it could be a bunch of things considering his trach area was really bothering him.
Jax has a horrible viral illness!Ther is nothing that can be done but let it runs its coarse.I am relieved its not Pneumonia which is what his ped had mentioned and so did E.R. doctor.The doc said she could admit him and we could go home today.I told her..its viral which puts others at risk of it in hospital and nothing can be done.Why not take him home and let him be comfy in his own bed.She agreed and we came home late last night.He is cranky still but i been alternating Tylenol and Motrin to try to keep my sweet boy comfortable.Hoping this is over fast and i get my sweet smiley happy little man back soon.