FEEDING!

As you all know Jaxson has a g tube and gets all his nutrition from it.He aspirates when he eats.I have been working with feeding with him forawhile now he lost all desire to eat after getting the gtube.I kinda gave up a bit to let him gain weight.Now he is 43 lbs and doing wonderful.So we are going back to bolus and not continuose and trying the spoon again.He has lost all taste for babyfood and will have food blended.One of his favorite things to eat in tapioca pudding.He likes it but struggles because he has lost capabilities to eat.Wish us luck on this.I have been doing lots of oral therapy with him and we are seeing it take effect.He can now pucker and can chomp down pretty good.I would love to see Jax one day eat all kinds of foods by mouth!I know he can because he was eating well before the gtube.

AMAZING!

This little Lovey amazes me!We are working on communication with a switch thing.We play a game with Jax and we stop if he wants more he has to push the top for it to say more.Needless to say Mr.smarty pants has mastered it.Today we had pre op appointments for Jax!The doc has talked to us about decan(removing trach) for good.We are so ready for this day to come.His trach hinders him in many ways!Cant go out in the cold,cant go to the beach because he cant be near sand,cant swim or play in the tub and many other things.So hopefully we get good news from his bronch and can lean towards trach removal in the near future.My little sweet boy is STANDING(yes you heard that right)STANDING on his good leg.He did this all on his own.He is so ready for hip surgery and tendon release surgery so he can get in a stander.Jax wants to be more mobile..he is up to 45 seconds setting unassisted.We have seen leaps and bounds in our sweet boy the last 6 weeks.All i can say is our Son is AMAZING!I need to capture this stuff on video you will be AMAZED too!

OUR NEW VAN!

We have been looking for a Van with a lift in it for a long time for Jaxson.We had to break the wheelchair down to fit in our car.No more of that we have our Van.I found this one at a really great price and i am so Blessed we could purchase it.We priced many and these vans with lifts are outrages on price.I am so thrilled we can go places in comfort now !

Changes!

20 Months ago he was barely 5 yrs old and weighed 15 lbs so so tiny he was.Now he weighs in at 37 lbs and has gotten so incredibly tall.He is always so happy and lights up with big smiles.He is learning at a rapid speed and we are so proud of him.i love when i come home from work walk up to him and get the biggest smile and drooly kisses!Jaxsons life was hanging in the balance when he came home.Now he is happy and healthy and the most amazing ittle boy.I am so so blessed to be his Mother.

MY HANDSOME HUSBAND!

WEARIG HIS PURPLE HEART!LOVE THIS PIC OF HIM!

PICS OF THE KIDS!

FAMILY PICS!