MY PRINCE!

PERFECT IN EVERY WAY!

SETTING IN HIS NEW CHAIR!

scary day!

Today started off great!Had an IEP for Jaxson and was very impressed with the team they had and all that we discussed.Jaxson is new and a challenge that they are eager to learn from and teach.Came home  from that and decided it was so beautiful that we wanted to have a BBQ.Husband sent me to town to get all the stuff to cook out and ended up calling me as pulled into the grocery store parking lot!
 Jaxson's nurse was changing his diaper and seen a pretty good amount of blood.So they loaded up and i met them at the hospital.Th ER Doctor assessed him and was sure he had an internal bleed going on some where.Several x rays and blood test later did not show any signs of a bleed!Come to find out the omnicef(antibiotic) and his iron vitamin he takes together turns his stools blood red.My sweet boy is fine and healthy as can be.It was scary but i am so grateful he is ok!

sickness has hit this house!

This morning Landen did not get up was mopey and just did not feel good.He slept most of the day and coughed in between.He started running a fever and refused to eat or drink.This evening i did get him to eat a little and drink about 4 oz.A couple hrs later i offered him more water and he drank 16 oz.Tonight he  is fever free and drinking his water happily!
     Jaxson started coughing yesterday really bad  coughing.It worsened today so i got him into the Doctor.It was a good thing i did...My sweet Jaxson has Pnumonia .Jaxson Doctor thinks it best if he gets over this at home with antibiotics and his nebulizer treatments.If he worsens he said to go to ER and Jax will be admitted.I am hoping we wont need to go that far and he gets over it here at home.We caught it pretty early so its not to bad right now!The xrays showed a small area of his lungs affected by it.He was cranky today and just did not feel well.This is why i am scared to death to put him in school.Jaxson is medically fragile.If his health even deteriorates a little bit at school i will pull him as his health is much more important.
     I do not like neither of my boys getting sick!It is hard on them as neither child can tell me what is wrong.I am glad i pay good attention to them and can see when they are declining from sickness.Please keep prayers for my sweet little boys!I want them happy and healthy and sweet as they always are.

Jaxson's appointments!

Yesterday Jaxson had a eurology appointment !He got a new cream to try on a problem we have been having.Other then that all is well there!Today was ENT...We were worried his scars had came back inside the trach area and i was happy when the doctor checked and everything looked great!I was worried he was going to have another bronchial scope but now that worry is off the table and he is good for a few months.He wont have to be seen again in ENT until August! We are working out details for Jaxson to go to school...I am not impressed at all and will be calling the town we are planning on moving to soon to meet with them and tour the classes for next fall!He will go to school starting in the next week or so 2 days a week from 9 p.m to 1p.m. until school is out and hoping next fall to have him enrolled in the atchison schools!Tomorrow i am staying home and getting some much needed deep cleaning and some paperwork that has been put on the back burner done.I am ready for a day at home we have been on the go all week and i am worn out!

Peek a Boo

This is Jaxsons favorite blanket...He got it for his Birthday and Loves it.He wines when its in the wash and when he has it he pulls it up over his head.Its soft and its warm and its YO GABBA GABBA!This morning i came into the living room after getting me a cup of coffee to see this!He is such a character !