Jaxson is not feeling well!

Those stupid adenoids are causing him so much problem UGHHH.The mucus drainage off them makes him cough and choke and not want to eat poor baby boy.He sounds awful today and has slept alot.He has OT today and was not very cooperative so i knew he did not feel well.Pray they get those darn things out soon so my baby will feel so much better.

surgery/double booked

The ENTS nurse called and scheduled Jaxson's surgery today.I was not here when she called and hubby took the phone call.It is scheduled on a day that we have 2 children mercy appointments.I am calling tomorrow to see if we can get the surgery date moved to another day.It takes forever to get appointments at childrens and if i switch them it could be many many months away.
I took Jax to the doctor in hopes to get all his shots caught up.The doctor wants to wait until July when all his appointments are done.I am not happy because Jax is so acceptable to so much right now without being current on his shots.I would like to get this adenoid surgery as soon as possible.He has mucus draining off which makes him cough and sometimes choke.It scares me to death.His current weight is 19 lbs and 7 oz.He is growing my sweet baby boy.The doctor wanted to refer Jax to a orthopedic surgeon for his ankle.I had a fit and told him No way we are doing therapy on it and are seeing progress.Let us try this and the Brace (we have appointment in June for a brace) before someone takes a Unecessary surgery on my son.I want to try all outlets before anything like that is done.Jax is building so much strength.. he does not need his back supported when holing him on your shoulder anymore.He does Not stiffen when picked up or scissor at all.He is able to hold his head up for longer periods of time now.I am amazed at how well little one is doing.He has this Rattle ball he loves and when you roll it in front of him he giggles.I love to hear him laugh and i love his smile.He likes to be held and talked to and he tries so hard to talk back.Tonight he petted the cat with my help and he just smiled so big.
Jax will hear my voice or my husbands and go in search of us with his eyes he knows who his mama and daddy are.The seizure medicine is working well we have not seen any seizures at all.He is using the nebulizer treatment less and less i am thrilled about this.Tomorrow he has PT and OT.They will be so amazed when they see what all this little one can do and has done in Just 2 weeks sense his last visit.
I am so happy we got to bring him home.I have worried over him for a long time..Gods timing is perfect he knew Jaxson needed to come home now.I am sad for all of those who are stuck waiting to bring their babies home.I would not know life without Jax in it.As i tell everyone... God made Jaxson just for me.I am so honored to be his mommy.

Two super cute Boys!

I love these boys so Muxh!I am so happy to be their Mama.

Therapy is going well here at home

I am watching Jaxson change and gain strength in his limbs.He is able to hold his head up for longer periods of time now.His legs seem to be getting stronger as well.When i was working with him and had him doing tummy time i put his favorite rattle ball in front of him.I took his hands and had him try to bat at it.He thought this was funny and he would laugh outloud.He is so cute.I put him in the bumbo seat and set him against the sofa for head support.He loved being able to set up He did this for about a half hour.I love this little man.

GREAT WEEKEND!

Jaxson has amazed me all weekend.Friday we had a bbq and had my sister and brother inlaw over.We were all outsied on the deck and i was holding Jax and all of a sudden we heard this faint laugh.Their he was giggling with a huge smile on his face.I was so excited as it was the first time i heard him laugh.Satruday i had him on the floor doing theapy he was on his tummy and i turned to grab some toys turned back and there he was UP on his KNEES and elbows almost totally in the crawling position.I said Great job Jaxson he smiled so big.I love cuddle times when the other kids go to bed and its him and I and he is so full of smiles.He is so sweet..How many times was he ever just cuddled and gave kisses?He loves this time as much as me.I tell him say MAMA and he tries his little mouth moves its so sweet.I love our little guy he has been a true joy.Oh and the Past couple nights he has slept all night in his crib.

ENT APPOINTMENT!

Jaxson had his ENT appointment today.The doctor said yes he needs his adenoids out soon.His office will call next week with a scheduled surgery day.He was not able to see his tonsils the stinker clinched his teeth together and would not let doc see.He said he would look at them during surgery to see if they also need to be taken out or to leave them alone.
He also said this surgery will take place at stormont vail in Topeka because they do kids there.He also said Jaxson will stay overnight due to his special needs.I am ready for this to get here.He will feel so much better once they are out.The poor baby has such a rough time.
This evening we were setting outside on the deck and i was holding Jax!I heard him laugh outloud for the first time it was just soo cute.I hope to hear many many more laughs from him.He is such a sweet little man.I bought him a new toy and it sings nursery songs.One of them is Hickory dickory dock he LOVES it and smiles really big when its playing.He still dont sleep at night..I have gotten him up early in morning and dont let him nap and he STILL stays up allnight.I am exhausted but know it will get better soon.I love this little man i am so blessed i am his mommy.

COOL DUDE!