were alive

I have not posted much just keeping busy at home.Yesterday Michael and I and the little boys went to meet our attorney about readopting Jaxson.Linda called and said mom we have no water.We get back home and find a pipe was broken and water was dumping all over under the house.We got the city to come shut the water off and by this time it was pouring down raining.Michael had to wait until today to get under the house to fix it.The good news is it was was not broken.A clamp the plumbers put on came undone.Michael re clamped it and called the city and they came turned us on and we now have water.
I have been having a hard time getting Jaxson's supplies he needs for his feedings.I called them last Tuesday to order bags.They said they would be here in 2 days.Two days went by an no bags.I called them this morning because we have 2 bags left.the one he is using and one for tomorrow.Mind you these feed bags are only good for 24 hrs.Then we switch them out.They tell me oops sorry your shipment is delayed you wont get the bags until Tuesday!I am not very happy right now.I will have to wash the bags really good and reuse to make it until the shipment comes.
Michael and I stopped at a sidewalk sale..I found the MOST adorable Nike tennis shoes for Jaxson.I decided to wait on buying them until he gets his botox shots started.I am still waiting for them to call to begin them.I may have to call children's mercy this week and let them know we have not got the call to set them up yet.Its been 6 weeks we should of heard something by now.
All the kids are doing well and life is going along just fine.School will be starting in a couple weeks.It seems the summers for them get shorter and shorter.Rebecca is the only one who is ready to go back to school.Linda is so so about it.Landen says..NO NO SCHOOL ha ha.

ok one more

Landen loving his BABY!

Promised pics!

He has Grown so much!

He is growing!

We went to the doctor yesterday to get the stitches out of his Mic_Key button.They weighed him and i about fell over when they told me his weight..My little chunky monkey weighs 26 lbs and 7 oz.This explains why my arms go so numb when holding him .I promise soon to to have new pics of my sweet little one.

HOME!

We got home yesterday around 6:30 P.M. We are so happy to be home.The hospital gave him the first of his immunizations yesterday before releasing him.Last night Jaxson's feeding pump started acting up.It would not charge and was saying low battery although we had it on the charger.So this morning i had to call them and let them know what happened.In the mean time i fed him manually.The medical supply brought out a different machine as they did not have the machine we have.We will use this one until the new replacement comes on the other one.I like the one we had.. its small and easy to use.This one isn't bad just bigger and a tiny bit more complicated.The funny part is..They sent us the wrong bags the other day for the feeding pump Jaxson has.Well they fit this pump we are using so i don't have to mail them back.He said to use them for this machine.I am glad this all worked out.We should get our first shipment of formula for him this week.
All is well now.Jaxson is happy to be home and has been full of smiles.He has been a champ for all he has been through.Tomorrow i call the doc here to get the stitches out of his Mic-key button.They are starting to get really red and sore poor baby.

Jaxson may be home tomorrow!

Tonight Michael is at the hospital with Jaxson.Michael has to do all his feeds by himself.If he does not do them Jaxson will not get to go home.So my husband is doing them he is such a trooper about it all.When i was at hospital today Jaxson was so smiley and happy.He is just the sweetest little guy.He has bad diarrhea and i think its the pediasure doing it.The nurses do not think so but i am positive of it.He had it before surgery too.I will talk with them tomorrow.
We are still waiting to hear if our insurance is going to cover the formula.If so it will be delivered to our door with all of Jaxsons other supplies.We did receive first shipment today.I hope they do and the medical supply store said they do pay for it.So we wait and see if the doc got the order in for it.
I had to purchase a new crib..Landen was mad because Mommy was at hospital with Jax and shoved the crib over and broke it.It was not fixable.So he has a brand new crib..This one was worth the purchase as it goes from baby bed.. to toddler bed.. to twin bed.Tomorrow i am praying that Jaxson and my husband can be released from the hospital.I am tired of making the hour and a half drive I just want my family home.

Home today!

I stayed home from the hospital today!The hour and half drive and all the walking has taken a toll on my body.My feet are swollen and i feel icky.Michael is with our sweet angel at the hospital.I will go tomorrow and stay with Jax and michael will come home.I will stay with him until his release.I called to check on him and was happy to hear the eeg is done and the dentist came too.He had one cavity and the dentist said that tooth is almost ready to fall out so all is good with his tiny little teeth.
Michael said they are dripping his food tiny amounts every hour.That he is wide awake watching his mobile.They are keeping him from having pain which is great.I miss my baby so much already but tomorrow i will be with him.My husband and I will learn all about feeding and caring for the gtube tomorrow.
Landen is loving me being home with him he was so happy when he seen i was here this morning and was clapping his hands.
In the mist of all this its my Rebecca's 15Th Birthday today.We are planning something special for her this weekend.