Night braces

I don't like them at all!They are bulky and big.His tiny hands try to slide out of them I adjust them like they said where they are snug but not to tight.He fusses when i put them on.We will see how he does with them after a few more days If his hands slide out anymore i will have to call PT and tell them these are not working.I will have to take a pic and post they are the weirdest looking things i have seen.I do hope we see some results using them.

Awesome News!

I am so happy to say.. that Jaxson's hearing aids are 100% paid for through our Insurance.I was stressing how we were going to pay for these.I am so happy God is so good!

5 MONTHS!

Five months ago we arrived on U.S.soil.5 months of loving you and caring for you!I can hardly believe you have been home 5 months today.I love you Jaxson Emmanuel Miller!

BEEN CRAZY HERE!

Linda caught some type of flu.She went to the doctor and he said it has been lasting 7 days.Sunday Landen started feeling really bad and slept all day.When he was up he vomited and refused food.I started feeling awful last night and both Landen and i had the ugly D word.I changed millions of those icky diapers with Landen.I kept him home from school today he still had a touch of diarrhea but over all is better.I was the one miserable all day.I just wanted to crawl in bed and sleep.That was not happening because i was the only one here with the boys.
Tomorrow Jax has a doc appointment.He is suppose to get some shots we will see.I want to ask him about the constant wheezing striding sound Landen has.It is not his asthma its sounds like drainage he is swallowing and making sounds on.I have no idea but hope for an answer tomorrow.After this appointment Landen has his eyes appointment at children's mercy.We are going to have a long day but worth it.
I got to feeling a bit better and needed to get to walmart and get distilled water for Jax and eye patches as his is almost gone.Jax has odd shaped feet and i have had an awful time finding shoes to fit him.I found a pair the cutest little black and white canvas shoes.He wears a 5 but i got a 6 because his foot is so wide they were easier to get on him.I also bought him some new socks sense his foot has grown his are getting to small.I also got him a couple pants outfits..I love garanimal clothes lol.They are cheap and hold up great.I hope to get good news on both the boys appointments tomorrow.

Landen

Landen has came so far.His progress is amazing.The neurologist told me our son would not do this or that and he just wont progress,Boy was he wrong ! My non verbal son is more verbal then ever.He learns a new word everyday.This morning he was eating breakfast and he wanted more.I said what do you want?He said MORE.I am proud of him he is talking more everyday.He is learning signs as well.The only one i am able to get him to do for me is thank you.He was so excited about going to school this week.He got right up dressed took his medicine and happily headed out to the bus that he now calls "the big twinkie".He is so happy and he loves music and dancing.He giggles all the time and is a true joy to be around.He has learned to count to 5..working on getting higher !There is allot of things i did not list about my guy!But i tell you when he came home at 4 1/2 yrs old he was functioning at a 9 month old baby.He could NOT feed himself at all.He did things a 9 month old would do.Now he is happy and thriving and i would not know life without this guy.He has blessed us so much.I just had to share with you all about him because he has came so far.I am very proud of my little pooh bear.

What a day!

Jax had four appointments today at children's.First was eye doc..Jax will have to keep his eye patched for another month and be evaluated again then.They did say glasses are in his future.Next appointment was wheel chair fitting.This appointment was long about 2 plus hours.The wheel chair they ordered will be adjusted for a perfect fit for him.It will have his name JAXSON on it and its cranberry red and black.I am praying insurance will help pay for it.The wheelchair is very expensive.We wont get it for about 3 months.He was weighed today too and is up to 28 lbs 4 oz.He is growing so fast!Next appointment i was so excited about.He received his zebra hearing aids.I was prepared for him to cry..Nope he had a look on his face like what the heck?LOL.He was making all kinds of adorable facial expressions.Last appointment was OT he got his braces that he will wear at night for his wrist.They were fit and he did not seem to mind them.We will do on an hour tonight.Increase every night by and hour until he can handle 8 hrs of them on during sleeping time.The doc also increased his baclofen as well.
She also sent a referral to Pulmonary clinic.They think he may have some sleep apnea.I hope they get this appointment quickly as that stuff is scary.Our babe is doing WONDERFUL.He is such a happy guy and coos all the time.
Please say some prayers for us as our family is going through some things.I cant discuss it yet but we can really use some prayers.

WOW!

Jax was really crabby this morning and he started blood curdling screaming when his daddy was holding him.I came out of the laundry room and said let me try to my wonderful husband.I picked him up and he looked at me and INSTANTLY stopped screaming.He just wanted his mama is all.This made my day.I love this little boy so much.