sore legs!

Jaxson is sore from the botox.He cries when changed or moved wrong.Poor baby i hope the soreness goes away quickly.I don't like seeing him hurt at all.He is napping right now and when he wakes up i will give him some Motrin.

Landen struggles!

Landen showed some really bad behavior today at school.When it came time to get on the bus to come home he threw himself on the ground.When his Para was able to get him up and got him on the bus she tried to buckle him in.This did not go well he pulled her shirt scooted out of seat belt and kicked her.THIS IS NOT MY LANDEN!He has NEVER acted like this before.Landen was taken off the bus and put on another bus as the bus driver is also a para on that bus and works in Landens class room.He got on her bus no problems at all.
I will be calling the teacher tomorrow to see what we can do to make this situation better.I know a few kids on his bus have picked on him.I did complain and the kids got in allot of trouble.But evidently something is going on.Landen has never refused to get on the bus before.We need to get to the bottom of this right now.It has to do with riding the bus.He was great at school all day no behavior problems until time to go home.Landen is a sweet gentle boy who laughs and smiles all the time.I need to know what is happening on that bus.

Precious!

Jax had his little hand on his daddy it was so cute!He has never rolled on his side like this and curl up close.Hubby said he woke up because Jax was squishing him.

Botox appointment!

Jax appointment for his botox shots was today!It was very painful to him and hard for me to see him go through it.The doc said No therapy for 2 days and then he can resume as normal.He got shots in both legs front and back.His legs are so stiff and he keeps the curled up most times.They said in 2 weeks we should see a difference and in 6 months a HUGE difference.If his legs start relaxing more it will be much easier to dress and change his diaper.I am glad we don't have to do these often it was so painful for him and broke this mama's heart to watch him go through it.

Love this sleeper!

looks like a baseball outfit shoes and all!To CUTE! Of course the little one modeling it is just the cutest ever!

botox appointment!

Jax has a botox appointment at noon today.Please say a prayer for my sweet baby.These are painful and they are going in his left ankle.These shots are to help with the tightness of his tendons and muscles.His foot in turns so bad it almost looks clubbed but it is not.
The doc wants to do 6 months of botox and then see what next step will be..Casting or Orthotics.We are hoping for Orthotics.these are suppose to help loosen the tendon and muscles so if he gets orthotics it wont tear his skin up as bad.Pray my boy does fine.I don't like seeing my sweet smiley boy put through any pain.Its going to be hard on this Mama.

eye appoinment!

I forgot to post about Jax eye appointment.We have to continue patching for another month and check in again then.His good eye is turning in and the eye doc said that is actually a great sign.She said his weaker eye has improved.So we are still patching.He don't like it but it keeps him from having surgery.Oh and the best news of all...he weighs...are ya ready for this?HE WEIGHS 30 LBS.His sister calls him her little fat cake.