JAXSON'S SURGERY

Jax did well during surgery!The surgeon found many more keyloid scar tissue inside then he thought and had to call more surgeons in to help.He had one on the outside his trach the size of a grape.He had 5 more inside and one was pretty big which was causing airway issues.He did so well they sent him home.As we were leaving recovery for the elevator Jax started coughing and bleeding allot from his trach.Michael and I was suctioning him and freaking out as wow that was allot of blood.A nurse also panicked and had us come back to recovery and went and got the surgeon.He said the bleeding is normal as when Jax coughing his trach is rubbing where his scar tissue was.It scares me to death to see him bleed like that.
We got home at 9 p.m. and cleaned jax up and put fresh clothes on him as he had blood everywhere.I gave him more Tylenol at 9 pm for pain and hooked him up to 300 MLS of water via gtube.Jax cant eat until after midnight.I am up for the night to make sure my sweet baby is pain free and comfortable.Right now he is sprawled out asleep in Landens bed.In a half hour he will get his first feed after 24 hrs and some motrin for pain and more neosporin on his surgery site outside his stoma.I don't want to wake him for a diaper change although he needs it as he needs rest .When he is awake he cries which causes coughing and blood.So for now the diaper waits.Please keep my little one in prayers for a quick recovery and healing time!

HAPPY BIRTHDAY LANDEN!

Today my sweet boy turned 12 yrs old.How the years have flown bye.We will celebrate his Birthday on Saturday because of being with Jax at hospital.

HAPPY BIRTHDAY LANDEN!

Today my sweet boy turned 12 yrs old.How the years have flown bye.We will celebrate his Birthday on Saturday because of being with Jax at hospital.

SURGERY!

Surgery for Jax is tomorrow!I am up packing a bag as we know we will have to stay the night!Linda is coming to stay with Landen and Rebecca for the night until we get home Friday!Please keep Jaxson in prayers as he has a bronchial scope tomorrow.As they remove the scars in his trachia area and pray they can give us answers to a future of having no trach!

Christmas!

AFTER OPENING PRESENTS!


SANTA CAME


We had a wonderful Christmas!2 very excited little boys and one very excited 16 yr old.Yes excited but was not up early.I woke at 8 am Christmas morning to find the house quiet.So i made coffee and made my husbands favorite Cinnamon muffins got them in the oven then woke the kids.

BUSY

Thats how it was today!Although it was busy we did get our Christmas shopping finished and got new back tires for the van!the kids are doing pretty well.A concern has creeped up with Jaxson and I will be calling his Ped.He is vomit ting because he swallows his drool and then vomited it.Not only drool but his pediasure as well.This is not suppose to heppen.Jaxson had a nissen done when he got his g tube.The nissen is suppose to prevent him from vomiting so he will more then likely get an xray to see if its intact or not.Other than that he is doing wonderful.He is growing and thriving and just a happy lil guy who gives the greatest drool kisses ever.Jax loves the Christmas tree and stares at it forever.I know its the holidays and its busy !Just one day i would love to just relax and spend the day just chilling with the kids!Looking forward to Christmas day to do just that!