BIG CHANGES!

So much has changed around here..i have watched this sweet boy of mine grow and change!Jaxson had hip surgery in december...he is so much more happy now..he also has gotten glasses which now he can see about 5 feet away!He is so much happier !Those awesome smiles and giggles i love so much!My sweet child who came to me very sick and tiny..Now he is happy and healthy!I am so Blessed!

Update on the kids!

Landen is doing very well!He had a horrible sinus infection for a couple weeks and an awful sore throat but he is now back to normal and back to school!I love Landen so much he amazes me!Jaxson oh how sweet he is!he is so much more happier now that he is not in pain with his hips!He is all smiles and is kicking around more and scooting and wiggling!He has been  through so much and has a trooper through it all!The ent sized his trach down a couple weeks ago and it is going very well..Our hopes is to get rid of the trach in the near future!Which is also what Jaxson's Entis working toward too!Both my sweet babys are doing so well!I have so much love for both these boys!They may not be able to tell me verbally they love me !They sure do show it with their eyes and their amazing  smiles!

sleep safe bed!

Jaxson needs  a bed that he can sleep safe and comfortably in...Our insurance does not pay for a sleep safe bed so i am saving as much as i can!I have also set up a page..I do not like asking for help..Its not my thing but i really need your help with this bed!I am adding a link if you would like to donate!

http://www.gofundme.com/7ak4hc! This is what the bed looks like!He is currently sleeping in a very old style hospital bed!Not good for him at all...Please help a few dolars here and there really adds up!

look at these legs!

I cant believe how good he looks..he can move them like he used too!I am going to have one active boy soon once his healing is done and therapy begins.he can now wiggle his toes and move his feet around oh and kick....kicking is new for him...my little boy is pretzel boy no more that  his hips are fixed!

Healing!

Jaxson had his cast on for 3 weeks!He now has this brace and is healing rather nicely..I love watching him move his legs and wiggle his toes.He used to scoot around on the floor until his hips got so bad he just could not!His healing is coming along and he is so much happier.I am so blessed to have my son in our lives!

Birthday Boy!

Jaxson turned 9 yrs old on February 11 th!I can hardly believe he is 9...he had a Thomas the train party and had an awesome party!he got lots of presents and loved the icecream the best!

  Jaxson had double hip surgery on January 24th..the surgery took 5 hrs and was able to repair both hips...she wanted to make his right hip socket deeper but was not able to do so because his baclofen pump was in the way.so in a year we will go see her to see if she can complete the right hip then.she wants him to grow a little more...he is home and doing very well..night time seems to be when he has the most pain..so we are managing his pain the most then.The best thing I have seen is he wiggles his toes!He has never done this before...Jaxson will see the orthopedic doctor on February 17th to get stitches out and possibly the cast off.this little man amazes me so much he is one tough guy!