Jaxson has been keeping us busy!Last night he would not sleep in his crib at all...everytime we put him in it he cried.Michael stayed up and rocked him until 4 am.I gave him pain medication and that did not seem to be his problem.Tonight i cleaned his incisions and put clean dressing on them.Tomorrow we will take the dressing off and let them air for awhile.Our nurse came in this morning to 2 of us dragging tired and just plain exhausted.She called the agency and told them we needed more hrs.Now we have full hrs he was suppose to have from the beginning which will help us alot.I do all his night care...suctioning trach,turning him every 2 hrs,changing diapers and so on.His last feed is at 2 a.m. so i also make sure he eats.I will talk with the nutritionist about settings for the pump for a continual feed at night.This way i can get some rest!Today Jaxson was all smiles for the nurse!He loves her and hams up to her all the time.Through all of this Jaxson is my hero...He has been through so much in the past 2 yrs and amazes me how strong he is.
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