Yesterday Jaxson had a rehab appointment to get his pump emptied and refilled!We are seeing great results with the pump !Jaxson is much happier as he is not so tight and in pain.I did ask the rehab Doctor when we can see orthopedics!She said it has to be 6 months after he had the pump surgery so we are looking at June!I am ready for this appointment as he will hopefully get the much needed surgery to get his hip and ankle repaired..Both have been dislocated for many years and cause him pain.The needle to empty and refill the pump was very painful for Jaxson even though he had lanacane on the site an hour before my poor guy.So after we left the rehab office we went to the gift shop and he got a wonderful texture book and 2 more pairs of socks.Then we went to walmart to get groceries and he got Perry the Platipus slippers and a yo gaba gaba movie.Yes he is spoiled but oh he is ever so easy to spoil!
I have also been looking for a bed for him...He needs a bed that is higher up so it is easier to get in and out !He also needs one that has rails.The bed we wanted to get him was a sleep safe bed but they are 8,000 dollars.So a man had listed a bed on a local sell site.I contacted him and he was ever so nice.He told me he had bought a hospital bed for his mother and the mattress is brand new.His mom told him when she passed to please give it away to somone that could use it.I will be picking this hospital bed up soon for Jaxson.
We are waiting on a bad storm to come in bringing with it 10 to 12 inches of snow and sleet mixed in,I am worried about losing power and not being able to charge Jaxson's suction machine or his feed pump.or his sat moniter and night moisture machine.So my husband and i went and bought a generator to hook up these things if need be.We are ready to the best we can and will be home for quite a few days now!
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