One more pic!

The Bride and Groom and Rebecca!

Our Daughters wedding!

It was such a beautiful wedding!Hannah was gorgouse Anthony was handsome and of course my Husband was very very handsome!I am so very Happy for Hannah and her husband Anthony!

WHAT A WEEK!

This week has sure been emotional and crazy!I wont go into details on my blog but wow has mine and husbands stress level went through the roof!Things have calmed !I let go and let God handle it.Last night i was putting Jax to bed when his humidifying air machine decided to not work anymore.I called the 24 hr hotline and told them right away.He was deliverd a new machine today.So in order to get moisture in his trach i did 2 saline nebs through the night and kept his HME on.He did well and was not dry.
Jax has wanted to be held alot this week!His hip is really bothering him badly.I am going to have to call and get his orthopedic appointment pushed up.There is no reason for him to be in so much pain like this.I dont mind holding him as i love to cuddle him.Today i was holding him and he was setting up and he was giving me drooly kisses.Oh how i love those drooly kisses.
Not only is it a Holiday weekend but our oldest is getting Married on Sunday.We have a full schedule.Tomorrow morning her and her fiancee ar being baptized so we are going to attend.Then wedding on Sunday drive home Late and have 4th of July BBQ here at our home!Come Tuesday i will be exhausted but happy!

FLOPPED WEEKEND!

Yesterday was a planned yardsale!We dont have a garage and it poured down raining!I put everything i could on my front porch but the people could not see what was there and just drove by.I mean who wants to get out in the rain to buy another persons stuff?So i packed it in and plan to have another in the near future!
On top of a yard sale fiasco Landen has been sick all weekend.He slept allday yesterday refused food and was running a fever.I started pushing him to drink some water.He dont like pedialyte and gags when he drinks it.He dont like gatorade either.So water ,and vitamin water and sprite is what he has been drinking.Today he did got up giggling and he ate a bowl of soup and drank 6 oz of sprite.I am making a doctor appointment for him tomorrow.He gets the chills when his fever breaks and crawls back in bed which is where is now!
This weekend did not go as planned at all.Next weekend though is busy,busy busy,Our daughter Hannah is getting MARRIED!Saturday we are off to kansascity to see her and her fiancee get baptized and then Sunday Married.Then we will come home late on the 3rd and plan for a bbq here at home for the 4th of july.Its going to a wonderful happpy fun weekend.We all need some happiness and fun in this house!

BUSY WEEK!

Wow has it ever been busy here!This week Jax and I went to Kansas city!First we went to a place that has donated equipment and we got his bath chair even cheaper then the one i listed below!I was thrilled as our insurance don't pay for bath chairs and income is incredibly tight in this house right now!I got the rifton blue wave chair like the pic below for a donation fee of 20.00 I was so excited i don't have to worry about husband and i losing our grip when holding Jax in the tub now.hen it was on to get his wheel chair readjusted.Mr Jax has grown enough the back needed raised and the head rest needed to be adjust because he cant keep hi head on it and kept falling sideways.I had to call the doctor for a new script for Sandals for his wheelchair as his feet grew and got so chubby his foot don't fit in them anymore.
Then off to a store i bought my dress at for my daughters up coming wedding.How in the world i even got the dress out the door with that security thing on it i don't know.But i did and found when showing my husband the dress!So i stopped in the store and got the thing removed from it.I showed her the receipt that i paid for it.She asked me twice if i was returning the dress after i told her i wanted that security device off my dress and i am not returning or exchanging.I got it done finally and brought my pretty dress back home with me.Then its been work and clean and prepare for a yard sale tomorrow.Wow do we have some stuff to sale.Lots of baby items LOL i did not realize how much stuff i had for Jaxson.
It has been an overall busy week!Sunday will be our laid back day and hopefully weather permits and the boys and I can lounge on the deck and let Landen play all day!

ALL ABOUT JAX!

Things Jax loves!

He loves to rough house with silly games of shaking his bottom and singing shake your booty.He loves to be bounced on the knee!He loves to play patty cake and have his feet tickled with your mouth.He loves the song Jesus loves me.He loves baths !He loves his rattle ball and his activity gym.He loves to be held and rocked and he loves to be talked too.He loves to be read too!He loves his TJ Beary tale doll.He loves men(thinks they all are daddy's).

Things Jax don't like!

He don't like to ride in the car!He don't like to set in his wheelchair(hurts his hip).He don't like to touch allot of textures!He don't like to do therapy(depending on what it is).He don't like to be left alone in a room for even a second.He don't like the Kansas wind.

Jaxson has came so far..as we still try new things a year later!He is so sweet and has a good nature about him.He has taught me allot along the way!What an amazing little guy i have!

GREAT WEEKEND!

Yesterday was the Ferris family reunion!It was great to see my cousins,Aunts,Uncles,and many other family members.It was really humid out but we enjoyed the day until Jaxson spasticity from the humidity got bad so we decided it was time to head for home and get him in the airconditioning.When we loaded him in the car and got the ac going he was so much better.He was fussy so once home i fed him changed his diaper and gave him his medicine.He took a 30 minute nap and was so much better and played on the floor for quiet awhile!Landen loved the reunion as it was at a park and he played on the equipment the whole time.It was a fun filled day out of the house and we enjoyed great company and great food!
Today is Fathers day and my sweet husband just wanted to be home and relax for his day!He is napping with both boys!Rebecca is watching a movie and all is quiet here.I am doing some laundry and boxing yard sale stuff!It has been a Great weekend and we have enjoyed it!