Tummy issues!

I am not sure what is going on with Jaxson!He has had some stomach issues and i cant seem to get any answers from the doctors.He has been horribly gassy,vomiting,and his tummy is tender to the touch.At first i thought he was back ed up and he is super sensitive to that.But that is not what is going on.He is miserable.So i will call his doctor tomorrow in hopes of him being seen.I cant stand my little one hurting like this.

AN ANGEL!

This pic was taken today when he was watching cartoons setting in his wheel chair..I turned him around to take his picture.I love his shirt!It says....SOME ANGELS HAVE WINGS SOME HAVE WHEELS!My angel has a hot rod LOL.

Jaxson's equipment is ORDERD!

I finally was able to order Jaxson's bath chair...This will work wonderful..Its light weight and can be used in the swimming pool as well!It also should last him for many years to come!
         This is a special tomato chair...I got it in a size 3 as my stinker has gotten so big that the chair in the previous post is equivlant to the size 2 in this one.It looks just like this but not the purple chest harness...It will be Tan!I hope this is it for awhile with equipment..I  was sweating when i paid for these 2 items..This stuff is by far not cheap.I do want my buddy to be comfortable so it was worth every penny!

Snow storm and other stuff!

The snow storm came in fast yesterday morning dropping 8 inches of snow in a fast amount of time.It was suppose to continue into today but did not and was sun shining and some of it was melting off.Tonight its suppose to get really cold.There is another possible snow storm coming this Sunday night we will see.
       We have been house hunting as i have mentioned.We found the perfect house but had found out our credit was messed up.We had no clue of this and have got a credit guy helping us.I am pleased to say it is fixed now.It wont show on the beureau  and show our credit score improvement until mid march!I am praying the house we want is still there.It is so perfect for us.We were told if we fix this one thing which we did we can make an offer on the house once we know the payment is credited to the account.So we wait and Pray.The even better news is we CAN get the loan.I am excited and keep saying...Oh this will look nice in this room and this will look nice in that room.
   We have been living in this home 19 yrs now.The stuff we have accumulated will not be fun going through.I have decided to start now!One way or another we are moving this house just does not work for us anymore its small and almost impossible to get Jaxson around in!
   The kids are doing well..Landen is a character and Oh how much i love him and his silly ways.Jaxson oh my Jaxson he is so lovable and smiley all the time.He lets us know what he wants when he wants it.He has a favorite blanket he got for his birthday and if he don't have it he whine's.He cracks me up!Rebecca is growing to fast i cannot believe she is a junior this year!How the years have flown.So this is the update for the Miller household.we are doing good and hope to make a big change soon with a big move.

Growing at rapid speed!

this chunkey monkey is outgrowing his medium tumble form!Mommy will be purchasing him a new positioning seat very soon!

busy couple days!

Yesterday Jaxson had a rehab appointment to get his pump emptied and refilled!We are seeing great results with the pump !Jaxson is much happier as he is not so tight and in pain.I did ask the rehab Doctor when we can see orthopedics!She said it has to be 6 months after he had the pump surgery so we are looking at June!I am ready for this appointment as he will hopefully get the much needed surgery to get his hip and ankle repaired..Both have been dislocated for many years and cause him pain.The needle to empty and refill the pump was very painful for Jaxson even though he had lanacane on the site an hour before my poor guy.So after we left the rehab office we went to the gift shop and he got a wonderful texture book and 2 more pairs of socks.Then we went to walmart to get groceries and he got Perry the Platipus slippers and a yo gaba gaba movie.Yes he is spoiled but oh he is ever so easy to spoil!
  I have also been looking for a bed for him...He needs a bed that is higher up so it is easier to get in and out !He also needs one that has rails.The bed we wanted to get him was a sleep safe bed but they are 8,000 dollars.So a man had listed a bed on a local sell site.I contacted him and he was ever so nice.He told me he had bought  a hospital bed for his mother and the mattress is brand new.His mom told him when she passed to please give it away to somone that could use it.I will be picking this hospital bed up soon for Jaxson.
  We are waiting on a bad storm to come in bringing with it 10 to 12 inches of snow and sleet mixed in,I am worried about losing power and not being able to charge Jaxson's suction machine or his feed pump.or his sat moniter and night moisture machine.So my husband and i went and bought a generator to hook up these things if need be.We are ready to the best we can and will be home for quite a few days now!

You know your child loves his nurse when!

She comes in the house in the morning and mommy is dressing him and he starts stiffening and not cooperating at the same time smiling at her.When she takes over dressing him and he is smiling at her and relaxing to get dressed!When he lays kisses on her allday...when he is just happy..Thats when you know you have a WONDERFUL nurse to take great care of your precious child!I am so happy he has her  and she is very good with him .I am happy i have no trust issues and all is great!Jaxson is my world and i am glad he has beomce the nurses too.