Friday, November 30, 2012

Bibs!

Jaxson is a major drooler and we are always looking for bibs that work for him...This is a bandanna bib i love this bib my husband not so much.I also have 4 microfiber ones we bought that go over the head.They work good too but the over the head ones are so BIG.The bandanna ones are stylish and cute and you can see his cute clothes.As you can tell you see which bibs i reach for.I have 2 bandanna bibs and just placed an order for 4 more.He looks so cute in them!

Met my Granddaughter today!

We went to the Hospital to meet our itty bitty Aaliyah and see how our daughter is doing.Hannah is doing ok she is puffy with fluid and they are giving her Lasix to help with that.She is sore from her c section but is doing overall well.Aaliyah is so sweet and tiny Oh my goodness so tiny weighing2lbs 2 ounces.She is doing great and is on oxygen.Her daddy made it in this evening and the nurse told them they get to hold Aaliyah for the first time this evening.Both parents are excited about finally holding their baby girl for the first time.
     Jaxson stayed home with the nurse today.The nurse is great we love her...But still weird not having our Angel with us today.My husband and i could not wait to get home and scoop him up and love on him.Jaxson has been so happy and smiley and talkative the past few days.This is great as we alway love to see him like this.Oh how much i love my sweet Boy!

Wednesday, November 28, 2012

Welcome to the world!

Aaliyah Renee Banks!Our Grandaughter arrived at 12:50 A.M.She weighs 2 lbs and is 14 inches.She is doing really well...Tomorrow they are taking her off the vent as she is breathing on her own and taking her out of the incubator.Mommy(My daughter Hannah) is not doing so well.Her blood pressure has sky rocketed and the doctors are having a hard time getting it down.Mom started swelling and went to doctor and was admitted to hospital right then.She has pre eclmapsia it was severe so baby was delivered right away!Please Pray for Hannah,Anthony and baby Aaliyah...Daddy(Anthony)Is in the military and Is in school in Texas.He will arrive on Friday and be here until Sunday.He is very worried about his wife and baby girl.

Saturday, November 17, 2012

surgery Cancelled!

Jaxson was suppose to have surgery last thursday!We did a weeks with the baths in wipes to get the extra flora off his skin and drying his poor skin out.We let the nurse off for 2 days and got a babysetter for Landen when he got home from school.We get to the hospital and was called back at same day surgery where Jaxson's vitals were taken and he was put in a hospital gown and we wait for them to come take him for surgery.The surgeon comes in and anounces the surgery maybe cancelled due to not having an available admit bed.5 Hours later we were told it was cancelled.I was all sorts of angry...Angry because my son had been without food since 11 pm the night before..angry because the prep was a pain to get him ready for surgery..angry because we would not have the nurse friday and ANGRY because i paid a baby setter for nothing(i was home before Landen).Not only that the 2 hr drive to get there and the expense.So here we wait to see when this will be scheduled again.I want to get this done while its winter as we keep Jaxson in as its so cold so will be better then in spring when we are out and about and he would not feel to well.I also want this done for Jaxson he will be so much more comfortable and have alot less pain.This was out first Bad experience with cmh.I am hoping we do not have a repeat of this!

Praying about a change!

My husband and i bought our home 19 yrs ago!This house was condemed when we bought it.We poured our sweat and blood in this home to shape it what it is today!Problem is old house need work and we seem to be on the never ending money pit with our home.We built an addition to discover it now has major problems.I am sick as there was 30,000 worth of work to have the problems it does is very sad.This house also has 2  of the bedrooms upstairs.This is not good with a autistic blind child.We have problems getting Jaxsons wheel chair around in the home.
   We started looking at houses..ranch style one levels with finished basements.We found one and we are in LOVE with this house.It will move us back into the city but so worth it for us.So we go to the reality office to try and get financed to find out my husband credit was a mess.We got a credit guy to help us and we are on our way to fixing it.We are praying to be able to purchase this house in January!It is scary undertaking a house payment alot larger then the mortgage we have now.It is also scary changing Landen to a different school.I do think it will all work out in the end.There is another house we will be looking at before we decide.But so far NOTHING has beat the one we looked at it has everything we want!Including a finished basement and huge backyard fenced in.That is perfect for Landen and our pug Rudy who would run off without a fence.Praying everything goes well and we can purchase a home soon!

Monday, November 12, 2012

Equipment!

We are always looking for equipment that Jax can use to help him better!The picture of him on top is his new chair that was given to Jax.Jaxsons nurse brought it today!She takes care of another child and that childs mom asked her if he could use a Rifton chaIr as her child outgrew it.We are thrilled as he sets up really good in it and it has a tray for playtime.This blue tumble form chair is also his other chair.It works but he is starting to outgrow it.I am grateful for the awesome moms that know how hard it is to get what your child needs and are willing to help another child.I am  very happy.He was able to play with his toy tonight.He actually played with it without my help!Way to go my little man!

Wednesday, November 7, 2012

Jaxson's New Nurse!

Jaxson's new nurse started Monday!3 days here and we all LOVE her.She is wonderful for Jaxson!She works with him on therapy and school things.She has been working with hand over hand with him.She also makes him hold his sucker and put to his mouth.She plays with him ,she cleans machines and changes out medical supplies and everything.We never have to tell her to do something she just does it.I am so glad he is her nurse.He is getting pretty attached to her too.He talks to her and cuddles with her and smiles at her.I love her because she is all about Jax !I cannot be any happier!