JOB'S

I had interviews with 2 ladies today!I got both Jobs i start Monday on one and the other i start Wednesday!Now to get myself in a routine will be the big issue for me.I know my husband is capable of handling things at home but i still worry!School will be starting and my husband will have to get up and get Jax prepped for his school day(teachers come here).I will have medicines ready every morning for Michael to give Jax.He don't do medicines.All i have to do is prepare them in syringes and he will give them to jax.I just leave a note and at what times he gets them.I will be working 30 hrs a week!Basically my hours everyday are 9 am to 4 pm!
This will be an adjustment for all of us!I have not worked much since Jax came home.I have my 4 hr a week job i been doing for about 2 months now but its broke up 2 hrs twice a week!This is allot more hrs away from home though!I am happy to have these jobs as right now jobs are hard to come by!I have to fill out paperwork for both tomorrow and start first thing Monday morning.I really like the the lady i will be spending the most time with we hit it off immediately.Wish me luck that its a quick adjustment and a prayer for my husband as he takes the role of stay at home daddy!

LIFE

Life has been throwing some huge curve balls at Michael and I lately.But today has been a fairly good one.For starters i got a call about another PCA job of 6 hrs a week!I work 4 hrs now for another person.So this will be 10 hours.I hang up with her after we set a date and time for the interview for the phone to ring again..Another person needing a PCA!This one has 20 1/2 hrs a week.I have an interview for this one as well on thursday!I am praying i get both jobs as this will be 30 hrs a week for me.Michael will be a stay at home daddy and take care of our kiddos here at home.He is a great Dad but i worry about him being in the house alot with the kids.He does not drive so its not like he can get in the car and take them to the park or something.
Tomorrow i am headed to ST.JOE MO. to apply for Jax ss card.I am ready to get this step done.I am glad things are looking up some!Now to get working and take the first check to get my car fixed!

STUFF!

Things have been a bit crazy here!We have been having some rough times but nothing to do with the kids.I wont get into it but we could sure use some prayers!I am still working my little 4 hrs a week.I was hoping to pick up another job but that has not panned out.I am trying to reinstate my nurse aide liscense and go back to work doing that.Michael will be a stay at home daddy when i go full time.The boys are doing great.Landen is learning and talking more everyday!He cracks me up as he does so much that is still like a toddler.What a little love he is.Everytime i go to leave he is right behind me with his sandals in his hand.He loves to go bye bye.
Jaxson cracks me up...Yesterday i picked him up and was dancing around the living room with him.He was making a noise through his trach.I thought at first he was crying until i looked at him and he had a huge toothless smile.He was not crying he was laughing.He loved everyminute of it.He smiles all the time and is so happy.He lets you know when he is tired as he gets cranky.Thats our que to get him in his jammies and into bed.He loves to be talked too and just smiles so big and starts babbling.He has came so far i am very proud of him.I have been working with him to eat again.Its a slow process but he is able to eat a few bites without aspirating.We are moving in the right direction with it.The biggest thing was just getting him healthy and strong.Now that we have done that we are seeing wonderful gains with him.He still dont get the sign language we have tried with him.
Rebecca just turned 16 and is doing good.She is reading alot .She is so bored and ready for school to start.
My first granbaby is due in september and we found out its a boy.I am thrilled to have a grandson and cannot wait to meet him.I am throwing a baby shower for Brittany in August.Thats about it thats going on here.Michael and I and the boys are going on a 3 hr road trip!Wish us luck as Jaxson does not like riding in the car !This should be interesting.

A JAXSON SCARE!

This morning Michael and i were getting Jaxson up out of his crib.His HME mask has blood on it and we both kind of freaked out.Put a call into the doctors and he called back and said we probably scraped his granuloma when we did his trach change last night.He is not bleeding anymore which is great and if he does start bleeding anymore to take him to the ER.
It scared us pretty good but i am glad our little guy is OK.Moments like this are scary..The trach thing with Michael and I is a learn as we go process.We are pros about cleaning care and trach changes but blood should NOT be there.I am just happy it ended with no emergency run.
I have to share a funny.I should of grabbed the camera but just didn't think too.Michael laid down with Jax for a nap.I went in to check on Jax and started laughing.My husband was awake still and said Denise look at your son.Jax fell asleep with his lips on daddies forehead.He fell asleep giving his daddy a kiss.It was so funny and all i could say was Now that is tired when ya cant finish a kiss LOL.

CHANGE!

The Miller house is getting smaller as my kids grow up and move out!Its a big change for me and its hard on this mommy to see her children leave the nest!My husband laughs at me as i am used to cooking allot of food for the big family we had.Now we end up with a ton of left overs .It is a habit that is hard to break and get used to with less kiddos being around its also quiet!Rebecca is now the oldest in the house and she will be 16 this coming week.The little guys have their little things they do but its not the hustle and bustle it was when all of the kids were home.
I miss having my kids home !I know its time for them to move on and make their way out in this world but it is still hard.So we are learning to deal with the changes of a cheaper grocery bill and the quietness in this nest.It don't make it easier though.The only good things is my kids call me daily so i get to hear from them at least!
This weekend is one of those weekends when its way to quiet!Landen is quietly playing with his toys at the moment(that's rare ).He is usually loud and making messes for me somewhere LOL.Jax is napping and Rebecca is in her room painting.When all the kids were home i use to dream about the house being quiet.Now that i have it i don't like it.So now we learn to deal with changes in our family dynamics...I know it will get easier we are just not there yet.

HE IS NOT CONTAGIOUS AND YOU CAN'T BREAK HIM!

That is what i feel like telling my friends and family!When Jaxson got his trach none of my family or friends want to hold him anymore.They are scared too!I have told them time and time again its there for him to breath and that's it you wont hurt him or catch anything.
I am to the point i have not pushed for them to hold him anymore.I see it as they are missing out.Its not only about holding but they talk to him from far away it's like they feel they need to stay a distance from him.It saddens me but mainly for Jax.The only thing i ask is they wash there hands before touching him.Is that to much to ask?Umm i don't think so!I ask this because Jax is at risk if they have a germ.So to my Family and Friends(not that i have many friends left).Jaxson is not contagious and you wont break him to talk with,cuddle him and play with him.
Its a big loss to you and Jax because you are missing out on one amazing little boy!So please be kind to my son!Let him know you adore him(I know you all do because you have all said so).
Just love him and talk to him.You are guaranteed to be awarded with the most amazing smile and a coo or two!You might even get a bat from his amazing eyes of his!

WHAT AM I GOING TO DO!

What am i going to do when i cant hold and cuddle him anymore?Jax is almost 40 lbs now and is getting almost impossible to hold.Oh how i am going to miss holding him in my lap and rocking him laying close to my chest.My Baby is becoming a big boy!OK i am done whining now!

I am just so darn Cute!

I was happy i smacked my ball..it rolled away and came back to me its some funny stuff!

My Mommy and me!

I like to set in my chair and watch yo gaba gaba!

My Big Sister Rebecca...she loves to give me kisses and tell me i am cute!

My brother he is so funny and was doing the duck walk!I like to watch him and smile at him!

Relaxing in the motel the night before my Big sisters wedding!I decided to roll from back to belly and my mommy caught me before i fell off the bed!

Just chillen at my sisters wedding reception!

Sleeping Prince!

One more pic!

The Bride and Groom and Rebecca!

Our Daughters wedding!

It was such a beautiful wedding!Hannah was gorgouse Anthony was handsome and of course my Husband was very very handsome!I am so very Happy for Hannah and her husband Anthony!

WHAT A WEEK!

This week has sure been emotional and crazy!I wont go into details on my blog but wow has mine and husbands stress level went through the roof!Things have calmed !I let go and let God handle it.Last night i was putting Jax to bed when his humidifying air machine decided to not work anymore.I called the 24 hr hotline and told them right away.He was deliverd a new machine today.So in order to get moisture in his trach i did 2 saline nebs through the night and kept his HME on.He did well and was not dry.
Jax has wanted to be held alot this week!His hip is really bothering him badly.I am going to have to call and get his orthopedic appointment pushed up.There is no reason for him to be in so much pain like this.I dont mind holding him as i love to cuddle him.Today i was holding him and he was setting up and he was giving me drooly kisses.Oh how i love those drooly kisses.
Not only is it a Holiday weekend but our oldest is getting Married on Sunday.We have a full schedule.Tomorrow morning her and her fiancee ar being baptized so we are going to attend.Then wedding on Sunday drive home Late and have 4th of July BBQ here at our home!Come Tuesday i will be exhausted but happy!