JAXSON'S SURGERY

Jax did well during surgery!The surgeon found many more keyloid scar tissue inside then he thought and had to call more surgeons in to help.He had one on the outside his trach the size of a grape.He had 5 more inside and one was pretty big which was causing airway issues.He did so well they sent him home.As we were leaving recovery for the elevator Jax started coughing and bleeding allot from his trach.Michael and I was suctioning him and freaking out as wow that was allot of blood.A nurse also panicked and had us come back to recovery and went and got the surgeon.He said the bleeding is normal as when Jax coughing his trach is rubbing where his scar tissue was.It scares me to death to see him bleed like that.
We got home at 9 p.m. and cleaned jax up and put fresh clothes on him as he had blood everywhere.I gave him more Tylenol at 9 pm for pain and hooked him up to 300 MLS of water via gtube.Jax cant eat until after midnight.I am up for the night to make sure my sweet baby is pain free and comfortable.Right now he is sprawled out asleep in Landens bed.In a half hour he will get his first feed after 24 hrs and some motrin for pain and more neosporin on his surgery site outside his stoma.I don't want to wake him for a diaper change although he needs it as he needs rest .When he is awake he cries which causes coughing and blood.So for now the diaper waits.Please keep my little one in prayers for a quick recovery and healing time!

HAPPY BIRTHDAY LANDEN!

Today my sweet boy turned 12 yrs old.How the years have flown bye.We will celebrate his Birthday on Saturday because of being with Jax at hospital.

HAPPY BIRTHDAY LANDEN!

Today my sweet boy turned 12 yrs old.How the years have flown bye.We will celebrate his Birthday on Saturday because of being with Jax at hospital.

SURGERY!

Surgery for Jax is tomorrow!I am up packing a bag as we know we will have to stay the night!Linda is coming to stay with Landen and Rebecca for the night until we get home Friday!Please keep Jaxson in prayers as he has a bronchial scope tomorrow.As they remove the scars in his trachia area and pray they can give us answers to a future of having no trach!

Christmas!

AFTER OPENING PRESENTS!


SANTA CAME


We had a wonderful Christmas!2 very excited little boys and one very excited 16 yr old.Yes excited but was not up early.I woke at 8 am Christmas morning to find the house quiet.So i made coffee and made my husbands favorite Cinnamon muffins got them in the oven then woke the kids.

BUSY

Thats how it was today!Although it was busy we did get our Christmas shopping finished and got new back tires for the van!the kids are doing pretty well.A concern has creeped up with Jaxson and I will be calling his Ped.He is vomit ting because he swallows his drool and then vomited it.Not only drool but his pediasure as well.This is not suppose to heppen.Jaxson had a nissen done when he got his g tube.The nissen is suppose to prevent him from vomiting so he will more then likely get an xray to see if its intact or not.Other than that he is doing wonderful.He is growing and thriving and just a happy lil guy who gives the greatest drool kisses ever.Jax loves the Christmas tree and stares at it forever.I know its the holidays and its busy !Just one day i would love to just relax and spend the day just chilling with the kids!Looking forward to Christmas day to do just that!

PURE JOY THIS HOLIDAY SEASON!

It is so fun to watch my 2 little boys get into the holiday!Jaxson set on Santas lap and just stared at him and was really fascinated with Santas fluffy beard.The christmas lights on the tree intrugue him and he could set and stare at the Christmas tree all day if i let him.We are so excited this year for Christmas.Last year Jaxson and myself spent it in the picu.It is not a good place to be on Christmas!This year we are home and so excited to what little Jax does on Christmas morning.
Landen loves Christmas.This is his favorite time of year!His favorite song is Jingle bell rock and boy does he get down dancing to it its so cute.All day today he has told me Santa is coming to fill his stocking and he looks up at it.I tell him 6 days to go and he claps his hands and comes over to the tree and pats his presents.Landen does not really care about the gifts..he wants to rip the paper in a pile on Christmas morning and jump in it.He loves the lights,the music,the Christmas cookies and goodies and is pure joy!I love both these little boys so much!They give me so much everyday!I get smiles and kisses and I love you's.Life is wonderful with my Prince and Angel in my life!

FEEDING!

As you all know Jaxson has a g tube and gets all his nutrition from it.He aspirates when he eats.I have been working with feeding with him forawhile now he lost all desire to eat after getting the gtube.I kinda gave up a bit to let him gain weight.Now he is 43 lbs and doing wonderful.So we are going back to bolus and not continuose and trying the spoon again.He has lost all taste for babyfood and will have food blended.One of his favorite things to eat in tapioca pudding.He likes it but struggles because he has lost capabilities to eat.Wish us luck on this.I have been doing lots of oral therapy with him and we are seeing it take effect.He can now pucker and can chomp down pretty good.I would love to see Jax one day eat all kinds of foods by mouth!I know he can because he was eating well before the gtube.

AMAZING!

This little Lovey amazes me!We are working on communication with a switch thing.We play a game with Jax and we stop if he wants more he has to push the top for it to say more.Needless to say Mr.smarty pants has mastered it.Today we had pre op appointments for Jax!The doc has talked to us about decan(removing trach) for good.We are so ready for this day to come.His trach hinders him in many ways!Cant go out in the cold,cant go to the beach because he cant be near sand,cant swim or play in the tub and many other things.So hopefully we get good news from his bronch and can lean towards trach removal in the near future.My little sweet boy is STANDING(yes you heard that right)STANDING on his good leg.He did this all on his own.He is so ready for hip surgery and tendon release surgery so he can get in a stander.Jax wants to be more mobile..he is up to 45 seconds setting unassisted.We have seen leaps and bounds in our sweet boy the last 6 weeks.All i can say is our Son is AMAZING!I need to capture this stuff on video you will be AMAZED too!

OUR NEW VAN!

We have been looking for a Van with a lift in it for a long time for Jaxson.We had to break the wheelchair down to fit in our car.No more of that we have our Van.I found this one at a really great price and i am so Blessed we could purchase it.We priced many and these vans with lifts are outrages on price.I am so thrilled we can go places in comfort now !

Changes!

20 Months ago he was barely 5 yrs old and weighed 15 lbs so so tiny he was.Now he weighs in at 37 lbs and has gotten so incredibly tall.He is always so happy and lights up with big smiles.He is learning at a rapid speed and we are so proud of him.i love when i come home from work walk up to him and get the biggest smile and drooly kisses!Jaxsons life was hanging in the balance when he came home.Now he is happy and healthy and the most amazing ittle boy.I am so so blessed to be his Mother.

MY HANDSOME HUSBAND!

WEARIG HIS PURPLE HEART!LOVE THIS PIC OF HIM!

PICS OF THE KIDS!

FAMILY PICS!