AMAZING!

This little Lovey amazes me!We are working on communication with a switch thing.We play a game with Jax and we stop if he wants more he has to push the top for it to say more.Needless to say Mr.smarty pants has mastered it.Today we had pre op appointments for Jax!The doc has talked to us about decan(removing trach) for good.We are so ready for this day to come.His trach hinders him in many ways!Cant go out in the cold,cant go to the beach because he cant be near sand,cant swim or play in the tub and many other things.So hopefully we get good news from his bronch and can lean towards trach removal in the near future.My little sweet boy is STANDING(yes you heard that right)STANDING on his good leg.He did this all on his own.He is so ready for hip surgery and tendon release surgery so he can get in a stander.Jax wants to be more mobile..he is up to 45 seconds setting unassisted.We have seen leaps and bounds in our sweet boy the last 6 weeks.All i can say is our Son is AMAZING!I need to capture this stuff on video you will be AMAZED too!