sore legs!

Jaxson is sore from the botox.He cries when changed or moved wrong.Poor baby i hope the soreness goes away quickly.I don't like seeing him hurt at all.He is napping right now and when he wakes up i will give him some Motrin.

Landen struggles!

Landen showed some really bad behavior today at school.When it came time to get on the bus to come home he threw himself on the ground.When his Para was able to get him up and got him on the bus she tried to buckle him in.This did not go well he pulled her shirt scooted out of seat belt and kicked her.THIS IS NOT MY LANDEN!He has NEVER acted like this before.Landen was taken off the bus and put on another bus as the bus driver is also a para on that bus and works in Landens class room.He got on her bus no problems at all.
I will be calling the teacher tomorrow to see what we can do to make this situation better.I know a few kids on his bus have picked on him.I did complain and the kids got in allot of trouble.But evidently something is going on.Landen has never refused to get on the bus before.We need to get to the bottom of this right now.It has to do with riding the bus.He was great at school all day no behavior problems until time to go home.Landen is a sweet gentle boy who laughs and smiles all the time.I need to know what is happening on that bus.

Precious!

Jax had his little hand on his daddy it was so cute!He has never rolled on his side like this and curl up close.Hubby said he woke up because Jax was squishing him.

Botox appointment!

Jax appointment for his botox shots was today!It was very painful to him and hard for me to see him go through it.The doc said No therapy for 2 days and then he can resume as normal.He got shots in both legs front and back.His legs are so stiff and he keeps the curled up most times.They said in 2 weeks we should see a difference and in 6 months a HUGE difference.If his legs start relaxing more it will be much easier to dress and change his diaper.I am glad we don't have to do these often it was so painful for him and broke this mama's heart to watch him go through it.

Love this sleeper!

looks like a baseball outfit shoes and all!To CUTE! Of course the little one modeling it is just the cutest ever!

botox appointment!

Jax has a botox appointment at noon today.Please say a prayer for my sweet baby.These are painful and they are going in his left ankle.These shots are to help with the tightness of his tendons and muscles.His foot in turns so bad it almost looks clubbed but it is not.
The doc wants to do 6 months of botox and then see what next step will be..Casting or Orthotics.We are hoping for Orthotics.these are suppose to help loosen the tendon and muscles so if he gets orthotics it wont tear his skin up as bad.Pray my boy does fine.I don't like seeing my sweet smiley boy put through any pain.Its going to be hard on this Mama.

eye appoinment!

I forgot to post about Jax eye appointment.We have to continue patching for another month and check in again then.His good eye is turning in and the eye doc said that is actually a great sign.She said his weaker eye has improved.So we are still patching.He don't like it but it keeps him from having surgery.Oh and the best news of all...he weighs...are ya ready for this?HE WEIGHS 30 LBS.His sister calls him her little fat cake.

6 months!

Today marks 6 months that Jaxson has been home with us.I can hardly belive its been 6 months alrady.It still feels like yesterday when i first seen him.In the past 6 months we have seen great strides in out little guy.I am so thrilled he is our son.

some things about Jaxson!

Things Jaxson loves...
to be sang to...Jesus loves me is his favorite
To be held and cuddled
to play kiss my hands and feet
His v_tech teddy bear
His Einstein ball
Listening to his daddy play the harmonica
play patty cake
Play peekaboo
His siblings
His mommy and daddy(love the smile he gives us when he sees us)
Bath time
Things Jax don't like...
Riding in the car
being on his tummy(even though he has too)
Thunderstorms
Not to many dislikes at all!He is such a wonderful little boy and has came so far in the almost 6 months home.

Opthamology appointment!

Yesterday Jax had an eye appointment.His strabismus is looking allot better.We still have to patch his right eye for another month as their is signs of it still being more dominant.But overall they are much much BETTER.Jax was in a wonderful mood yesterday and smiled all day long .I was so proud as the last few days he has taken an interest in his toys and now picks them up and puts them to his mouth.This is big for him.He also loves to plays patty cake and gets really excited and smiles real big.I am so proud of our little guy.

stuff!

Landen is sick and is on his second day home.He has a cold and cough and is cranky.This morning he was running a small fever and had a small seizure(after he had his meds).I am hoping he is well enough to return to school tomorrow.

Jaxson is doing awesome..he loves our skeleton the plays super freak and dances and he smiles at it and talks to it.Tomorrow he has an appointment with Opthamology for a check up on the patching his eye.I noticed the good eye we are patching is now crossing more then ever.I will mention this to the doc tomorrow.I have tried to do therapy with him for 2 days but he is having allot of pain in his sub flexed hip.So i do upper body with him and arms.I also do some tummy time as well.I have fought trying to get more therapy in place and while i was working on that did allot of extra here.He now has therapy set up starting on Friday!I am excited about this.

Rebecca is struggling with three of her classes.She gets very upset when her grades slip.I am working with the school to get her extra help in these classes she is having a hard time with.She is such a smart girl and gets so upset if her grade drops to a b or c.

Linda is loving her senior year this year.She works at the special needs preschool and LOVES it.She does this in the afternoon and gets so excited to tell me about her day.she wants to go to school to be a special ed teacher.I am glad to see a big turn around in her.Linda has been my difficult child that past few yrs.Things are much better with her and we have less power struggles.

My 3 older kids are all doing well.Hannah is a senior in college now.William moved into an apartment and is hoping he gets a job he applied for.Brian works at McDonald's and gave his 2 week notice to go work with his dad on the pipeline making double what he does now.
Michael and i just go with it all and enjoy watching our kids grow and change.Life is good!

SAY CHEESE!

That is just what he said as i snapped his picture.Silly Boy!

Chiefs Fan!

My husband and our adorable son watching the Cheifs game.My husband dressed him LOL.He said every chiefs game that plays that is the outfit Jax will wear.

Another zoo Pic!

I am having a hard time with my internet connection today!I tried to post this pic with my last post and it would not let me.

zoo trip!

Rebecca

We went to the zoo yesterday!We had a nice time..Jaxson slept through most of it although he loved the train ride and was so relaxed on my lap the whole time.After the zoo we went to chucky cheese.Landen did not care about the games he Just wanted Pizza!He was happy and content after 2 big slices to just set and wait for his big teen sisters to spend all the tokens on games.Of course his big sister cashed them in and got him a ball with shrek on it for Landen.Jax slept the whole 2 hrs we were at chucky cheese!I don't know how he slept through it It was so Loud.Had a great time yesterday.I did not get a pic of my Linda she runs from the camera but her boyfriend Robert is in the pic with my Landen.Landen and Jaxson are his buddies.

Its Official!

Today we had court to finalize adoption in our state!He is now legally Jaxson Emmanuel Miller our son forever and always!I dressed him in his traditional African outfit!I bought it when we were in Liberia.I am glad i did he is so Handsome in it.I am so happy its official now and we could not be more THRILLED.

Too Much!

Right now i have a full plate and things have been so out of sorts.I missed 3 very important appointments for Jax.I have been so emotional about things going on i got the days of these appointments messed up.I was able to reschedule 2 of them and waiting to get the third one.I cant afford to miss anymore appointments.I really messed up and will make sure i don't miss anymore.
Jax is growing so fast and i love watching him talk as loud as he can to hear himself.Its so adorable.Landen is sure making leaps and bounds and cracking me up.Rebecca has been horrible sick and is now feeling better and returned to school after 5 days of being Ill.Linda is doing great and loves working with the special needs preschool kids.She talks about them with excitement in her eyes.I have too much going but am praying it slows down soon!

Sorry for my absense

We have a guest staying with us who has kept us plenty busy!Our little guest will be going home this coming weekend.Jax is doing awesome.He is so chubby and he now has a double chin lol.He loves being able to hear and talks as loud as he can to hear himself.Last night i put him to bed and he was talking loudly(no hearing aides in at night) and was giggling.Michael and I said he was having his very own Party in his crib last night lol.
We got his very Important suction machine which is helping allot.He gags and chokes on his own secretions and this machine has helped allot.He starts his bot ox shots this week for his ankle.I am excited about this.We are waiting for a script for more therapy and oral therapy for him.He is doing amazing he don't look like the same child i brought home 5 months ago at all.I love my little man so much.I love caring for him and being his mommy.I love that smile he gives me when he wakes up and i lean in the crib.Sorry i have taken a break from blog Hiatus.I will be adding new pics of my Jax soon.