CLOTHES!

I just supplied my adorable great nephew with a bunch of fairly new clothes!Jax and Karter were once the same size!Jax has blasted past Karter and now Karter is getting Jaxson's hand me downs that are brand new.Winter outfits i bought and MR.Jax has worn a couple times no longer fit.They fit this cutie perfect i am grateful i can pass them to him.He even got a winter coat!His mommy said he needed one and i happen to have one my Chunky monkey was to big for.This is my great nephew Karter is he not just ADORABLE.He is a little love when he comes to my house Jax and i both get lots of kisses!

MY DOCTOR APPOINTMENT!

I went to the doctor today!There is definitely something going on with my kidneys.I have felt so bad the past few days.I been feeling bad for a couple months but the last few days have been the worst.He thinks i do have another mycentic cyst.I also have a kidney stone and its possible i may have more then one.I had blood in my urine indicating something is going on with my kidneys.I get a cat scan on Friday and it will show if i have a cyst or if its kidney stones.The reason he thinks its cyst...My stomach is really protruded to the point its very painful and hurts like it could just split open.The other is pressure in the ribs and pressure on oesophagus causing horrible heart burn.I cannot lay on my stomach at all as it feels like my kidneys are going to push right out my back.The bummer is i wont know the results until Monday.Doc put me on antibiotic called bactrim for a week.He thinks i am on the start of an infection.I am miserable and am trying to relax as much as i can.This is hard to do at times but i sure try my best.I just want to feel good!

WOW!

today his height and weights are...
31lbs 37 inches and hc was 43.4 cm

8 months ago....16lbs.27inches andhc was 42 cm
My lieel man has GROWN so much....almost tripled weight and 10 inches in height in 8 months WOW.

HOLIDAY AND WEEKEND

We had a nice Thanksgiving with all 7 of our kids and 3 of them had their boyfriend/girlfriends come as well.My husbands Dad also cam and We invited a couple that had nowhere to go for the Holiday.It was nice turned out great.All the cooking and cleaning wore me out and i have not been feeling good the last few days.The weekend we spent putting up the Christmas tree and decorations.I have been ready to put the tree up for a while now.I am excited because Jax is home this year and its his first Holidays with us.He loves the tree and smiles at it so cute!Landen also loves the tree and walks up to it and says...PETTY(pretty).Michael and I also did a little bit of Christmas shopping.We still have allot more to do.
Jax appointments are finally starting to taper off.I would like to see an increase in therapy for him though.Tomorrow he has neurologist appointment at Mercy and while there i need to stop in hearing and speech and get his hearing aid fixed.We got new molds which come with new tubing.I cut the tubing to short on the left one so i will take it in and let them fix it.
Jax is growing so fast he outgrows his clothes quicker then i can buy them.He is just so chubby but oh so sweet.I can hardly believe he has been home 8 months now.
Yesterday while at walmart Santa was there.Landen was in the cart i said Landen do you want to see Santa?He says...I LOVE YOU lol i took that as a yes and put him on Santa's lap.Then it was Jaxson's turn he would not wake up so he is sleeping on Santa's lap LOL.I got pictures but have no scanner.I have put going to the doctor off long enough so tomorrow i will be scheduling an appointment.When i make myself sick just sweeping the floor or doing dishes something is not right.I need to stay healthy for this family.

So much to be Thankful for!

I wont list everything thing i am thankful for But i will say I am Thankful for a precious little boy who entered our lives 8 months ago.I am so excited about the holidays this year because he is here with us.His very first with his family!He is so loved and cherished and i am just so excited about the holidays this year.Happy Thanksgiving...May you be blessed with Family and friends and Gods provisions.

YUCK THE JOYS OF THROW UP!

Jax has thrown up allot today and has created a ton of dirty baby blankets,bibs and clothes.I know its reflux with some added constipation(Miralax given)Big results will come in the A.M.He has an upcoming doctors appointment to try and get yet another doc to listen to the the parent who is with her child 24 7 knows all his quirks and what is going on.
Aside from Jax being sick things have been great here..Landen is funny as always having me in stitches with his antics and funny things he says.Right now he is stuck on listening to his little people Christmas CD and plays Jingle bell rock repeatedly doing a dance along with it.He is so much fun and the Love yous are coming out more and more.
The kids are now out of school until Monday and will be keeping me plenty busy i am sure.I have so much to be Thankful for this year and have been blessed with so much more then i deserve.God is awesome!

Cleaning got me thinking!

I been cleaning the house to get ready for Thanksgiving.Wow the stuff you collect in a few short months.I have thrown away and hauled off to the thrift store.It is crazy how much stuff or junk we collect.I can see how we can use our Money and time more wisely.Giving to others and less for ourselves.I mean who needs STUFF when their are kids all over this world that need worse then we do.Like all the orphans who need homes and go to bed Hungry,dirty,and no one to read to them cuddle them and tell them how much they are loved.
I want to devote more time helping and giving to others this season.To ones that are less fortunate.I want to do allot more for Others.Adopt a family maybe?Bake home made goods for the elderly?Donate more to the children on Reece's rainbow so those beautiful Loves can find a home.We are blessed with health and happiness why not bless someone else who deserves it.

Diagnoses!

I have never really talked about Jaxson's diagnoses.We are still going through appointments and i am sure before said and done there will be added ones.Jax has quadriplegic spastic cp...This means all limbs are affected and spastic means they spasm when he stretches or gets excited(arms mainly).He has bronchial asthma(mild).Not many problems with asthma like he did have.Hearing impaired...He is profound in his left ear..and moderate severe in his right ear.He wears hearing aides and it has helped.He loves to listen to music.Visually impaired...He was deemed legally blind..I am not sure how much functional eyesight he has but he tracks us well from across the room!He also loves to watch cartoons..yo gaba gaba is his favorite.Microcephalic..This means his head is small and does not grow like it should.There is no corrective surgery for this it may cause him problems and it may not.Failure to thrive..Of course he has this as he is so tiny for his age and i don't ever for see him reaching age appropriate size ever.Seizure disorder..This is from the many diagnoses he has..cp and micro alone can cause the seizures.Lastly he is an aspirator which requires him to be tube fed.He is a walking Miracle and God was truly with him as aspirating is deadly and could of killed him and he has been doing it for 5 yrs untreated.
We are waiting for the appointment at Nueros to get ct result.I had the appointment but ended up cancelling because we had a respite child who we could Not take with us and Hubby was out of town.We are scheduled November 29th.I think i know what the results to this will be.Jax primitive part of his brain is damaged which means he does allot of things an infant does!I am anxious to find out more.Jax also has a curvature in his spine and we were told he more then likely has scoliosis.
Now with all of this would we have adopted him?I get asked this allot and the answer is YES! We knew going in to this adoption he was a very special needs child.We are blessed to be this angels parents.We want him to come to his full potential !Do we expect him to overcome and be Perfect?NO this is not even a reality.One step at a time and we praise him for anything new he has accomplished.He will improve in some areas but wont in others.This does not change how we feel or look at him .He is perfect in every way to us.Some of the questions we get really make me mad and i know people are curious but hey that's my kid you are talking about.As many needs as Jax has and has went untreated and he survived tells me our little one is a fighter and God had his hands over him.Emmanuel the meaning...God is with us..He truly is with him and always will be.

RIDE THE HORSEY!

He loves to be bounced !

JAX SPEECH APPOINTMENT!

Jax speech appointment went very well and he gave us a new technique to use.He wants me to use a sponge swab with orange juice on it and go back and forth over his tongue after i do his mouth massages.It makes sense..tart things make you swallow.I know for sure Jax is refluxing it happens at the end of a feed or within the hour after his feed.Jax has a doc appointment Monday and i will be discussing this with the doc.He also has those weird blisters again so we will discuss this also.Today has not been a good day for him he has slept allot today.He does not seem sick just sleepy poor guy.He is growing so fast and so smiley.I love his amazing smile.He is so sweet!

Michael and I are headed to St.Joe this week to get the ball rolling to get a SS card.While in st Joe we will be taking him to sears to get his pictures taken.This is something i been wanting to do and why not while we are in st Joe anyway.

OOPS!

I goofed up on appointments.With Jax being sick..me not feeling well and just being busy with other things i goofed up the appointments yesterday!Michael had a follow up with surgeon,Jax had sleep consult and speech/oral therapy.For some reason i thought they were today and had to scramble to reschedule them.So today at 3:30 Jax had therapy,Michael has follow up at 9 a.m. tomorrow and the sleep consult is for December 7Th.I don't like messing these up because they can be so hard to get.I know everyone makes mistakes but i try hard to stay on top of the appointments.
The weather is cold here and has been raining.Some areas around us are getting snow.I so hope it passes us i am not ready for the white stuff just yet.All in All things are going pretty good here at home.I am excited about cooking and having Thanksgiving dinner here.I need to get in gear and make my grocery list.All my kids but one will be here.Brian is having Thanksgiving dinner with his Dad.William chose to have it with us instead of his Dad's(lots of reasons for this).I am hoping Brian will show up later in the day.Not much happening in the Miller household.

Nothing New

Nothing new going on around the Miller house.We stayed home all weekend.Jax is feeling better and has been smiles all day today.We had no appointments today so all was quiet .I still am not feeling the best and boy can i tell.My house is suffering.Tonight i cleaned the kitchen and baked some peanut butter cookies for Michael and the kids.I am still finding things to drop at the thriftstore.Its been quiet not much to share the last few days.

THE SICKIES!

Jax woke up with a horrible cough.He coughs so much he has vomited all his feeds.We are cutting them down now and bolus pedialyte in.I have been giving him Tylenol and alternating it with ibuprofen as he started a fever.He was already vomiting prior to this we are positive he still has reflux issues.I made an appointment with our doctor but he was full so Jax cannot be seen until the 22ND.If Jax worsens we will head to the emergency room.A failure to thrive child vomiting the calories he gets is BAD.It is bad anyway as he aspirates.I have also been giving him a cold and cough med.I hope he gets better quickly.
I myself am having some problems with my stomach and kidneys.I did make an appointment with my doctor.I hope it is nothing serious.I need to stay healthy for this family.I slept allot today as i was feeling so poorly.
Michael is doing really good.He is sore but says overall his shoulder feels better then before surgery.He has a follow up appointment this coming Wednesday.
It is cold here so no plans for the weekend.With Jax sick,Michael on the mend and myself not feeling the best we are hanging around home all weekend.I hope to keep Landen and Rebecca well Linda also has a nasty head cold.
I got my Reece's Rainbow Christmas tree angel ornament today!I am praying this precious little angel finds a family.She so has my heart.

Jaxon,s hearing and speech appointment

His appointment went very well.His hearing aids are working great although she did make new molds as his are loose and not making a good seal.He will go back in 6 months and have his hearing tested again in 1 yr.He is doing really well he is such a sweety.
Michael is healing good!He is behaving LOL and not using that arm.He does not sleep well and is up and down several times a night.It is hard to lay in one position for him as he likes to sleep on his stomach and cannot right now.The kids are all doing good.Landen keeps me in stitches with his silliness.Rebecca is all teen and everything is so Huge to her although to adults its just trivial.Linda is doing great and loving school this year.I am scheduling an appointment for myself tomorrow in hopes to figure out whats going on with my stomach.All is as well as can be in the Miller house hold.

TUMMY TIME!

Jaxsons appiointment and Husband's surgery

Today Jax had another eye apppintment he has been seeing the eye doc once a month now for 6 months.I was frustrated.All these months they have been telling me he was near sighted and has strabismus both correctible.They have known all along that Jaxson is way more visually impaired then that he is legally blind.Did they bother to tell me so i could get vision therapy in place?Absolutely NOT.I was mad and told her why was this information not shared with us?She said is he getting vision therapy?I said why would i set up therapy for near sightedness and strabismus i had no clue of him being this impaired.It does not make me love him anyless my biggest problem was he is MY CHILD and i am his mother i need to know EVERYTHING about him to better help him.
My Husband had his scope yesterday of his shoulder..Once in they found a bone spur floating around and it was tearing up his rotar cup.It worked like a piece og glass.He was in surgery for an hour and a half and is home recovering.He is doing better today he had a rough night last night.He has been having problems with his shoulder for years it had increasingly got worse over the past year.He is now on the mend and then comes the fun part for him Physical therapy.LOL or as he calls them those mean drill seargent ladies .

Appointments squared away!

I had to reschedule Jaxson's sleep consult until next week.Michael is have laproscopy on his shoulder tomorrow morning.So i changed the appointment.Wednesday he has a follow up eye appointment and Thursday he has hearing and speech.Going to be a busy week but he is worth it.

Orphan Sunday!

I am blessed to have adopted 3 children who are orphans no more!I am so Thankful that God has blessed us with all 7 of our babies and led us to 3 of them through adoption.

Nothing sweeter then this!

Jaxson laughing as his sister is tickling him...We dont get to hear this laugh much but boy when we do we all love it.He has the best giggle.Its music to my ears.

Happenings!

Things have been busy the last few days here...Michael and I have been decluttering and moving furniture cleaning behind it .We have taken a bunch of stuff to the thrift store.Gave things to my oldest son for his apartment and gone through all the summer clothes and put them away.I messed up on appointment.Jax is suppose to have his sleep study consult on Tuesday..Michael is having surgery on his shoulder that day so i need to change the appointment day.
I have not been feeling well and need to see the doctor.I have rapidly gained weight and have pain in my Kidney.I am worried i may have another cyst in my stomach .I am praying this is not what it as as they surgically remove them.The last one was the size of a volley ball and i was in the hospital for 8 days.I can not be away from Jaxson that long.
I been doing therapy on Jax !He loves the ball i stretch him on and giggles .He is up to 30 minutes of tummy time now without wearing out.This weekend and week we keep it at 30 minutes and try to increase the following week.He will be getting another round of botox shots soon.They are painful to him and i am praying the second time is better.We seen a little change from the first time but he still keeps his legs up and very tight.He does well with all his stretches though.He has no desire to pick up a toy.He did one time and put it to his mouth.I work with him holding and grasping toys as well.He is so funny when i do his oral therapy massages he looks at me funny and then he giggles lol.
Linda got her senior pics taken and her invitations ordered she is happy to be graduating this year.She has a college all lined up as well.Rebecca is doing good she cracks me up with some of the stuff she says.She had an eye exam and got new glasses.Her old glasses were child size frames and she outgrew them .The lenses were scratched so she was due for a new pair.She looks so grown up in her new ones.
Landen oh my this child of mine is so fun.He learns new words everyday and uses them well.His newest is actually a sentence...I want candy lol.I was doing ABC's with him the other day and he did great until we got to the letter O.After that they were all O's.I have been working hard with him on dressing self.He can put his pants on but struggles with his shirt and his Jacket.We will get there i am positive of it.I have noticed he is signing allot more at home now and not just at school.He can verbally say please but will also sign it when saying it.He does thank you really well now and your welcome.He knows several but these are the ones i can get him to do at home.He is a busy little guy and keeps me on my toes.He is a mess maker and i am making him pickup more.He don't always clean it up but it has improved.
My 3 grown children are all doing good.My oldest son is still looking for a job.I am praying he finds something very soon.Our oldest daughter Hannah is in her last year of college.She is so ready to be done.My Brian oh Brian he has so much to learn about life yet.He is 18 and quit his job and now realises his big mistake.He is living with his dad right now and his dad pays him for work he needs done.His dad owns a farm so there is always plenty to be done.
Michael and i both have an ailment right now and hope we are back up on our feet soon.Tomorrow we are going shopping for a fold up table and chairs.We need these extra for Thanksgiving dinner we are having and they will always come in handy for the future.Sunday we are resting for the busy appointment filled week ahead of us.

sleep study consult!

His sleep study consult appointment is November 9Th.He has to be evaluated before it is scheduled.Once he gets this done he should have a date for sleep study.Once that is done..Ent will set up another appointment and we will go from there.Going to get very busy but worth it if my boy will feel better!

He is growing so fast!

I cant get over how chubby Jax has got!He wore a 12 month clothes 7 months ago and now he wears size 2T.He weighed 16 lbs when he came home and now weighs..31 lbs.He is just the sweetest little guy and such a blessing to our family.He smiles allot.I love in the mornings when he is waking up and walk in to his room look down on the crib and am greeted with a huge smile.I Love when he snuggles in for cuddle time which he loves.He has came so far in the 7 months he has been home.