Diagnoses!

I have never really talked about Jaxson's diagnoses.We are still going through appointments and i am sure before said and done there will be added ones.Jax has quadriplegic spastic cp...This means all limbs are affected and spastic means they spasm when he stretches or gets excited(arms mainly).He has bronchial asthma(mild).Not many problems with asthma like he did have.Hearing impaired...He is profound in his left ear..and moderate severe in his right ear.He wears hearing aides and it has helped.He loves to listen to music.Visually impaired...He was deemed legally blind..I am not sure how much functional eyesight he has but he tracks us well from across the room!He also loves to watch cartoons..yo gaba gaba is his favorite.Microcephalic..This means his head is small and does not grow like it should.There is no corrective surgery for this it may cause him problems and it may not.Failure to thrive..Of course he has this as he is so tiny for his age and i don't ever for see him reaching age appropriate size ever.Seizure disorder..This is from the many diagnoses he has..cp and micro alone can cause the seizures.Lastly he is an aspirator which requires him to be tube fed.He is a walking Miracle and God was truly with him as aspirating is deadly and could of killed him and he has been doing it for 5 yrs untreated.
We are waiting for the appointment at Nueros to get ct result.I had the appointment but ended up cancelling because we had a respite child who we could Not take with us and Hubby was out of town.We are scheduled November 29th.I think i know what the results to this will be.Jax primitive part of his brain is damaged which means he does allot of things an infant does!I am anxious to find out more.Jax also has a curvature in his spine and we were told he more then likely has scoliosis.
Now with all of this would we have adopted him?I get asked this allot and the answer is YES! We knew going in to this adoption he was a very special needs child.We are blessed to be this angels parents.We want him to come to his full potential !Do we expect him to overcome and be Perfect?NO this is not even a reality.One step at a time and we praise him for anything new he has accomplished.He will improve in some areas but wont in others.This does not change how we feel or look at him .He is perfect in every way to us.Some of the questions we get really make me mad and i know people are curious but hey that's my kid you are talking about.As many needs as Jax has and has went untreated and he survived tells me our little one is a fighter and God had his hands over him.Emmanuel the meaning...God is with us..He truly is with him and always will be.