DOCTOR APPOINTMENTS AND MUCH MORE!

I recieved a letter from the ENT that it was time for Jaxsons appointment...I called to schedule and here we are waiting for a month now.I have some things i really need to discuss with Ent doc so i am getting frustrated.Monday morning i will be calling them.I also need to schedule an appointment for an updated hearing test and get my sons hearing aids looked at.Oe of them is not working at all.
   Next month Jaxson gets his pump refilled and will also get an increase in medication.While there we will try to get referrel to orthopedics.I have waited 1 yr now to get this appointment to discuss his surgery of his hip and dislocated ankle.It has been a long time coming.
      This should also be the week that we hear from Silver Cross who will be installing a ceiling lift for my sweet Jaxson!
           Jaxson also qualified for pateint care attendants for night support.I have hired 3 people who are working out great for my son.They all spoil him and love him to peaces.Its nice that mommy gets to sleep.The only night I have no help is actually tonight!Starting this week thugh he should have night support every night from here on out.This helps me greatly as i am my husband care giver and wow do i drag when i am up all night with my angel boy!I had to share this picture..he sleeps so sweetly..I love my Liberian angel so much!

CHRISTMAS SHOPPING ALREADY!

Yes i have started shopping...I have 8 kids and 2 grandkids and 2 daughter in laws and 2 son in laws to get something for.2 of my kids are sp needs so getting things they like is more pricey.What i dont get is why in the world companies charge so much for things a special needs child will play with.With that said...I found the PERFECT gift for Jaxson!I am going to switch adapt him....My little one will be able to actiate this one himself.

Have you ever !

Just watched your child sleep?I love to watch Jaxson sleep..he does that lil stretch and sometimes a giggle or two escapes him.He is so peaceful not a care in the world.I watch him sleep and think..wow i am one lucky mom to have such an amazing child!I set back and think How much i love him and his gorgous eyes and his beautiful long curly eyelashes.I love you Jaxson to the moon and back!

Jaxson's Story!

I have decided to write about Jaxson for all the new readers to my blog!My husband and i wanted to adopt another child internationally

..We had tossed around 2 countries he wanted Ethiopia and the more i researched Liberia is where i wanted to bring my child home from.In 2008 I was on a yahoo group and a woman had posted about a 3 yr old boy with cerebral palsy needing a home and this child was in Liberia.I contacted her right away and she gave me all the information about him and 3 pictures.The pictures did it i was in love with this tiny 3 yr old right away!I showed it all to my husband and his words were Thats our son!I then contacted the agency and so our adoption began of a tiny 3 yr old boy named Emmanuel in Liberia Africa.
     After waiting an unbearable 17 months due to embassy not issuing visas we got the ok to go get him.It could not have come at a more perfect time .I had a received and email from another mom who was in Liberia picking her son up.It simply read...Hello Denise and Michael,I have met your son He is very tiny and frail and i am worried about him when are you coming i hope soon!This was the day before we left for Africa.
  When we got to Liberia we were so excited to meet our little boy!My husband and I did not sleep well as we could not wait o go meet this little one we had prayed for for many months!The morning finally came as i packed a bag of clothes diapers and wipes toys and other goodies to take with me to meet our boy!When we arrived I seen this sweet child setting in a stroller on the porch.My husband and held our breath as tears flowed down our faces with Happiness that finally the day has come to take him with us forever.He was so so tiny his hands were the size of a 6 month old.We knew that he has cerebral palsy and asthma.I did not realize how sick he was until we took him to the hotel.He had a grand maul seizure..he was severley constipated and i had noticed he was aspirating when fed a bottle.His adenoids were horribly enlarged.He was very sick..We went shopping as all the diapers and clothes i brought  drowned him.
  I was worried flying back home as his health was getting worse.We flew home and went straight to the ER.My 5 yr old weighed 15 lbs,was having seizures,asthma attacks,breathing issues due to his enlarged adenoids.Our Jaxson was in our arms and that is all that mattered to us. Jaxson has had adenoids removed,Mic key button placed for feeding due to aspiration and a few months later he had a trach placed as his airway just collapsed.He also had a baclofen pump placed this past winter with great results.He is my trooper and I am so proud of him.Jaxson now weighs 41 lbs at 8 yrs old and is doing wonderful.He has the most awesome smile and gives the best drool kisses ever!I am very blessed to have Jaxson Emmanuel in my life.He is so loved and has touched many hearts!My Liberian Angel is a fighter !I am so Blessed to be his Mom!

Tummy Med is working!

Jaxson has been on eurythimiacin for a week and it is working no vomit at all.He is doing so good.He has been very happy this week as well and giving lots and lots of smiles.Hoping things just keep getting better and better for my sweet angel!

UPPER GI!

Jaxson seen the doctor this week after getting an upper GI.The doctor said his Fundo was a little loose but not enough to worry about.He said all the vomiting he thinks is due to Jaxson not digesting his formula fast enough.So for now we cannot gravity feed or bolus .His feeding machine has been set to feed over and hour and he is on an antibiotic which will help with his digestive issues.He just started this antibiotic last night so we wait a week and see.I am happy the doctor listened to all my concern's.Jax has dropped some weight from all the vomiting spells he has suffered through the past month.Oh How i don't like seeing my Liberian angel suffer in anyway.Hope this does the trick and he gains the weight he has lost back!

Settling in!

We have finally settled into our new home!Jaxson has had a rough time adjusting to his new bedroom and his new bed.He was in a crib at the other house and now he is in a hospital bed.It has been hard on him but now he is doing 100% better!As you can see his room is still a work in progress but it is coming along!