Christmas!

We had a wonderful Christmas although Jaxson was sick Christmas day!We did not go to my parents house and decided it best to keep Jaxson home!When the nurse came in the next day we discovered what was making Jaxson so ill and cranky..He was leaking spinal fluid my poor boy which in turn was giving him one huge massive headache.Several phone calls to Doctors and he is back on track.He has to lay flat which is hard as he wants to set up.So we spend allot of time on the floor entertaining him.He loves his new toys Santa brought him and will talk to them.He then whines until we turn them on for him.We have learned if you let him whine and walk away he will and can turn them on himself!He just don't like too!Overall was a wonderful Christmas!We are ready for the new year and to see what all it brings for our family!

YOU CANT FOOL ME!

Michael bought a Sanata suit so Jaxson could see Santa.With Jaxson recovering from surgery getting him out to Santa would not have worked!This little man Knew this was his daddy!No fooling him!Love the way he is looking at Santa!My child cracks me up!

appointment!

Jaxson had his appointments today..First was nuerosurgery to get his staples out.I was proud of my big guy he did not cry at all.His incisions look Great and he is so happy to get rid of those staples.Second appointment was rehab!He had his balcofen incresed 20%today in his pump and is down to 30 mg oral baclofen.I hope to see results tomorrow with the increase.We go back in 2 weeks to get it increased again and oral backed down again.Jaxson is doing wonderful.I am so happy that he will be able to set up and play again.He has not been able to as his staples pulled so bad.
    We are still waiting for his wheelchair parts to come in.Its been over 3 months ago that they were ordered.I am so ready for it.He is very uncomfortable when setting in it so we have not been using it at all.Jaxson is my hero for all he has been through and how he is so strong to handle all of this every step of the way.

Homestudy packet on its way!

Our social worker emailed me back last night and is putting the homestudy packet together for us.I am very excited yet nervous all in one.Every time i look at our sweet Sara's photo i melt.She is so beautiful and will fit in great with our family.I am also scared as we have the adoption  funds but nothing for travel when time comes to get her home.I am going to have to start fundraising!This sweet girl has walkied in my life twice...I am not going to lose her again and am so excited.I am praying we get through everything and get her home as soon as possible.

Better day for Jaxson!

Jaxson was so cranky yesterday and cried when moved at all!Today was much better and he set up for 40 minutes before having a melt down.He has been all smiles today!We are counting down the days now to getting the staples out!I am grateful he will get them out just in time for Christmas!Jaxson has been such a joy in our lives..when he hurts i hurt.I love this little boy with all my heart!

WHY?

Why does my family call and get cranky about something i bought my child for Christmas?It's really not no ones business!I bought Landen an Ipad for christmas..I bought it in November as it was on sale and a great price.She called me today and was right down nasty to me on the phone i told her it was not her business or concern what we do as a family.She said he wont be able to play with it.I argued about that as he uses one at school and its great for communication and learning.I cut her short and she hung up on me..It bothers me that my private life and what we do is out there..I have not told no one about the Ipad..My daughter Linda knows !

Prayers!

The government where Sara is does not have her diagnosis on a list to get her adopted.The country is shutdwon to adoptions but are letting children with special needs out.The problem cp is not one of them.Please pray for Sara as she has severe cp and needs to come home.We need to move as quickly as possible to get her here.Our Jaxson was in bad shape when arriving home.His doctors call him a miracle child for survining sever aspiration and seizures with no medication.Please pray we can get her out.Our wonder medically complex doctor is writing a medical about cp and the effects without medical care.
            Please say a prayer for finances to come together and for Sara to hang in there until we get her home!Her birthday is this month and will be sending a sweet prayer to her !

excited!

My first email of the day..emailed social worker to see if she can do a homestudy for us!Hoping she gets back to us soon!We want to get our girl home as quickly as possible!We have chosen a name four our girl and she will be called...Sara Rose!

Our exciting news!

After much discussion my husband and i have decided to bring a Princess home!This is some story...when we first seen her we wanted to adopt her.Due to timing and financing we had to pull out of the adoption completely!This same little girl came back to us!Basically the agency contacted me about adopting her.Michael and I talked it over and have decided ya know God is telling us something..this child has been put before us twice.Now mind you finances are tight.We are by far not rich!But a little girl waits for us..she waits for a mommy and daddy and brothers and sisters!
           We have decided not to let paying for an adoption or travel or anything else stand in our way.You see this little lady has severe cp!She is in a foreign country that cannot provide the medical care she needs!We can provide that and love and much more.So here we go on  a journey to bring home a princess...We have already chosen the most beautiful name for her.I am excited about having this angel in our family!I dont like asking for money at all its not my thing.I have to swallow my pride on this and have added a chip in.If you can even 5.00 will help!Every bit adds up.It is important we get her home soon...she is starting to regress and this is a big concern for her and for us.

Big Decisions!

We have had every road block imaginable trying to adopt a child!My husband and I have a heart for africa.We tried twice and it fail through due to affording to finance the cost of adoption.So we have take classes to become foster parents and it is now on hold as well.The classes are complete yes but the list we need to get liscensed is a mile long.
    The lord is not done with us yest and has decided to open another door to Africa again.We are going to take a leap of faith and work on bringing our princess home!Its a big decision for us as the finances are not there.There is more to this and I will share later when i know  this is truly going to happen!But remeber the saying if you let it go and it comes back to you its yours!Thats how this is or our feeling towards this situation.Please pray as we still have a couple Big decisions to make.Adoption is expensive and that is the main reason people do not adopt.Why does money have to be such a hurdle to love an orphaned child?Its not My Husband and i are by far not rich..we dont live in a fancy house..we dont buy designer clothes !What we do have have is LOVE!

Rough Day!

Jaxson had a rough day today!His nurse was awesome and managed his pain well...He got a sponge bath and massage and his dressings changed.He also thought it cool he got to lay in his diaper for and hour getting air to his incisions.He cried when moved and cried when the nurse held him !She set him at a 30 degree angle and he did not like it.It is so hard as we know he dont understand and thinks we are being mean.But it is Imperative to his health to move him.I dont want him getting pnuemonia which would be worse on him.Our nurse is training a float nurse tomorrow!Jaxson will get more nursing for now taking some exhaustion off Michael and I.He is full time care even more so with post surgery.I do night care with him..I love this little guy and would give him the world if i could!

post surgery!

Jaxson has been keeping us busy!Last night he would not sleep in his crib at all...everytime we put him in it he cried.Michael stayed up and rocked him until 4 am.I gave him pain medication and that did not seem to be his problem.Tonight i cleaned his incisions and put clean dressing on them.Tomorrow we will take the dressing off and let them air for awhile.Our nurse came in this morning to 2 of us dragging tired and just plain exhausted.She called the agency and told them we needed more hrs.Now we have full hrs he was suppose to have from the beginning which will help us alot.I do all his night care...suctioning trach,turning him every 2 hrs,changing diapers and so on.His last feed is at 2 a.m. so i also make sure he eats.I will talk with the nutritionist about settings for the pump for a continual feed at night.This way i can get some rest!Today Jaxson was all smiles for the nurse!He loves her and hams up to her all the time.Through all of this Jaxson is my hero...He has been through so much in the past 2 yrs and amazes me how strong he is.

Baclofen pump surgery!

This is what Jaxson had done Thursday!It gives him the medicine he has been taking orally but will take through the box now with way better results this way.We got home today he is sore but happy!We have seen smiles.We also have seen a big difference already in Jaxson's spasticity and high tone.Now to keep Jax comfy as this is a rough surgery and lots of staples.So far he is dong awesome!