ORTHOPEDIC APPOINTMENT!

Jaxson had his orthopedic appointment last week to discuss fixing his hip and ankle.what we thought he needed on his ankle was tendon release surgery is not at all what it is or is wrong.Jaxson is so high tone that his muscles being so high tone has caused his hip and ankle to dislocate.This has been like this for a very long time!Jaxson is on an oral muscle relaxer that is really not working.He is still stiff(yeas we do therapy with him everyday).So Jax needs surgery to get a pump put in his belly that will deliver the muscle relaxer to the brain and work much better then it would orally.If he has this done we will have to drive the 2 hr drive every 4 to 6 weeks to get more medicine put in the pump.Is it worth it?YES..it will help him much better then the way he is going at this point.He wants to grab and hold toys and he just cant because his tone is so high.We did do the botox shots twice but they did nothing for him.It worked for maybe a week.It is painful to put Jaxson through so we said no more.Why if they don't work.So here we are waiting to see rehab doc and get a date for Jax to be admitted for an overnight stay and a test to see if the pump will work for him before they actually schedule it to be done.Once the pump is done then Orthopedic will set up surgery to fix his dislocated ankle and hip!
It looks like our schedule is going to be busy but oh so worth it to see my son be able to grab toys and be easier to change his clothes and diaper.It will also hopefully get him prepared to be in a stander and standing on his feet.He wants so bad to stand and he stands great on his good foot.Jaxson has come so far in the almost 2 yrs home.He is the sweetest little boy with a huge smile all the time!Nothing can top that smile or the huge drool kisses or his excitement when he sees something he wants or loves.How blessed i am to be his mommy!