LONG TIME!

It has been a long time that i have blogged!I just have not been in the mood for the blog world!Hardly anyone reads it anyway so i just decided to take a break from it.Jax has came a long ways.We seen the Ent not to long ago!The Ent has decided its time to prepare Jax for getting his trach out premanently.I am thrilled about it.Jax now has whats called a passi mur.this device goes over the trach making him breath in the through the trach and out through his mouth.He can also talk again when he has it on.Right now he wears it for 30 minutes off and on throughout the day!He also gets his smell and taste back when wearing it.The benefits of this are amazing and we are enjoying hearing his Beautiful voice!This week we see rehab in hopes to get the baclofen pump.Jaxson has been taking oral baclofen with very little results.He is still really stiff.So we hope the pump works for him.He will need hip and ankle surgery and it cannot be done for 6 months after he gets the pump.His ankle is dislocated and been for a long long time.Our goal is to get him standing and hopefully walking.Jax is getting so so big weighing over 40 lbs now and so hard to pick up.I also want to see if Dr.Roge(Rehad doctor)can get a referel for therapies.He needs speech.ocuapational and physical therapy!I work with him but am needing new ideas as Jax is mastering what i was taught to do and its time to step it up.I am only working one job now and am stress free in that area. Landen has learned alott..His talking skills are comming along great.He is getting better with letting others touch him and him touching others.We are still working on self dressing.It is going very slow!This summer has been so hot and we have not been able to do much with 100 degree temps.We so badly want to take the kids to the zoo and worlds of fun but need a day where its not so darn hot.