Yesterday Jax had 2 appointments!The first one was with his pediatrician..Jax has another infection called psuedomonis!I asked the doctor what i could due to prevent it and he said really nothing as It is normal for a trach kid to get this!I also got the doctor to give him refill scripts of clairiton and Pulmocort(asthma med).
The second appointment was with the Nuerologist.We went over his MRI and discovered that jax has fluid on his right ear so he will be seeing ENT.This may be the cause of his right ear hearing impairment.Also doc said that Jax brain injury happened in utero.That his brain just did not develop right in utero,Resulting in cp and other problems.Jaxson is functioning at 3 months old.He has encelopathy where areas of his brain is shrinking and then he has areas that are quite large.Its up in the air what Jax will learn .
I love my son for who he is and will do my best to get him to his full potential.I and not set expectaions i will just watch as he amazes me with what he can do in his future.Right now we are enjoying him and how he plays with his toys and talks to them.It is adorable.This took us a year to get him intersted in toys.He also loves to interact with his siblings,his daddy and myself.He coos and smiles at us and babbles.Jax is a sweetheart and i am so happy he is my son!
1 comment:
Hey grl. Sounds like the boys may be simiar in the damage. Jeremiah has what they termed encephalomalacia. He has parts (for him especially in the front of the brain where there are big cysts of fluid where brain was damaged and died. He has brain in the middle and back but it is hard to determine how much of that is working or will work with proper input and stimulation! Just makes me want to work harder! REMEMBER the MRI is only a test and it is NOT an idication of what our babies will do. Our new Neuro today told us that she has patients whose MRI looks WAY better than Jeremiah but function even worse than he does and vice versa so there is no wa she will say for sure its a bad thing, HE MAY someday sit, roll, talk, walk in gait trainer consistently etc OR he may not ever do more than what he does now, BUT he is happy and he enjoys life! :) big hugs
tami
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