Last week was busy with appointments for Jax!He got his cast off and we went from there to Hanger to pick up his new AFO!We had to call hanger back because he has a very Prominent ankle bone and there is not enough padding and we are seeing pressure spots.He cries after 30 minutes of the brace on.I tried to pad it myself until we can get back to CMH with the AFO and he still cries and still has a red mark on his ankle bone.For now i am doing allot more stretching then usual to keep the foot from reverting back until we get his AFO fixed.
Friday he had his MRI!It went well but for some reason it was messed up in their computer system that he was to stay overnight for observation.I and the doctors were dumbfounded trying to figure out why whats the purpose.He was not on oxygen his Sat's were great and no fever so really no reason to keep him.The doctor let us go home as he said he is not sick but being in hospital gives him a higher chance of getting sick.So 2 hrs in a hospital room and we were released.
I ordered trach supplies today and requested different trach ties.The ones he has is tearing his skin up.We can get new ones but have to talk to the DME'S R/T.The rt has not called yet so i bet they send the marpac ones anyway which i will call them again.I am positive he is allergic to the material they are made from.I have some others we been using and i love them and would love to get them instead.His neck is not all sore and icky with them.
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