We came for his feeding eval appointment and to be fitted for wrist braces.His feeding eval did not go well at all .He was admitted in to children's hospital.I knew something was not right because when i fed him he would shoot food out his nose..sometimes choke and make striding sounds after.Today they did the swallow study and it was even worse.Jaxson aspirated on liquid,thickened liquid and baby food.He cannot take anything orally.He has a ng tube in for now.This week he will be getting a g tube put in and all his feedings will go through that.He also got part of his hearing test done today..the results for his right ear is he has quite a bit of hearing loss.He will get his left ear tested on Monday and then we discuss hearing aides for him to improve his hearing.
From what the docs say we will be here for awhile.While here they are pushing to get cat scan and EEG done so i don't have to come back.That sounds great to me.
The doctors said it is a miracle that Jaxson is alive with all the aspirating he is doing and has been for a very long time(more then likely sense birth).They also could not believe how much weight he had gained with aspirating the way he does.
I am happy my boy is strong willed and has all this stacked up against him and Gd is guiding him past this.He is a survivor a true angel.My son amazes me.We will be here all weekend and i will Know more come Monday.
Oh the nurses are learning not to be late with his Feeds he lets them know about it...He loves to eat.
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