Jax had his sleep consult today!They are positive Jaxson has some sleep apnea.She noticed how his breaths heavy and his chest wall really works hard to breath.The snoring and the constant raspy sound.She is positive he has pockets in his lung that is collapsing.He got an xray done of his lungs.She set up up a sleep study but we don't have the date yet.He will also be seeing pulmonary for his asthma she thinks albuteral is not the answer.Also they are FINALLY trying to get a script for reflux..He is averaging vomiting a feed a day.I am Praying that a cpap will work for Jax and not the trach they want to do.I told her we want to weigh and try all options before moving in for a trach.She did agree with this.She also said Pulmonary wants to see him before they script a med to help control his saliva.
Jaxson has scoliosis Rehab had told us it is possible he has it but the doctor today confirmed it.I knew he did as his spine is bent to the side and cause a knot on chest wall.This is all coming together now.Also Jax will be seeing a new set of docs as his primary doc.Childrens mercy has a clinic called the medically complex clinic and he will be going there for his care.Yes its a long drive for us but all interest in my child it is for the very best for him to see these specialist.
I called the company today on Jaxson's wheelchair!It has been way over 3 months and the chair is ready.The insurance company authorized to pay for it and now are holding it up.The company that made the wheel chair submitted for it in October and have not heard nothing from Insurance company.I will be calling the insurance company tomorrow.I am upset they authorize these things and then don't follow through.Jaxson really needs this wheelchair.I cant put him in school without it.Also his stroller is breaking and to be honest i just cant position him right in the stroller.We were really hoping to have the wheel chair before Christmas.
Our insurance has been really good!There is only 2 things we have struggled to get paid..His hospital stay which was authorized and still is not paid.We got the run around on this..First the ins.company wanted a itemized bill i made the call and they received it.Then they tried to pull pre existing conditions!I had them there its illegal and they could not do it and know it.Now they are claiming they are changing their Policy.This bill is from July when Jax got his Mic_key button.Now the wheelchair..which was also pre approved.Hmm isn't it funny both of these are in the double digits and they are refusing to pay but pay for all his other medical stuff?
The kids and husband and I have never had a problem with our insurance covering us.Just certain things on Jax.. I don't understand especially considering the pre approval.Please say a prayer for our Jaxson i am not ready for a trach and pray we can get his Much need wheelchair very soon.
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