Monday, December 27, 2010

Jax Christmas day in PICU

Christmas day was a great day for Jaxson!He was alert and happy all day.Yesterday was the same he was happy and smiling allday.Today he gets his stitches out and his trach changed.He will be leaving the PICU and moved to a regular hospital room.We are a step closer to coming home.I am still scared as our future is about to change with Jax being full time care now.I know he needed this trach though he was so sick and now he looks better his color is better and he is happier.The hardest part is the fact that Michael and I will do all his care because whoever would help has to be trained to care for him.This i know will be an issue.Pray for us and our son and what our future holds with our Angel.We are on an uphill climb with his medical and praying it gets better for all of us.
We Have made the decision to home school Jax next year.It is best with all his needs and care the he get his schooling from us.

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