LANDENS APPOINTMENTS

Landen got a great report at the Neurologist appointment.Landen weighs 44 lbs he has gained 5 lbs in a year WOW! This is the most he has gained in a yr since his arrival home 4 1/2 yrs ago.Weight gain has always been a struggle for him. The second good news is..HE HAS HEAD GROWTH!Last year his head measured 42cm and today a year later its 44.2cm. Head growth is a BIG thing for a Micro cephalic child.The doc did up his seizure med (carbatrol) from 200 mg a day to 300 mg a day.
After this appointment we went over to Opthamology to reschedule an appointment.This is where i get frustrated.This week the nuerology clinic called and said that our appointmnent was 12 45 today.OK wait a minute we were scheduled with you on May 14 at 2pm.She says no no today.I said no i have Opthamologist appointment then she tells me NO they cancelled.OK well i went to reschedule and GUESS what?The Nuero nurse LIED to me!He had a 2 pm appointment.OK cool its 1 30 so he gets his optho appointment done as well.Which by the way went very well his eyes look great she said he is a little farsighted in left eye and that glasses will not help to his Optical atrophy.She was impressed with the improvement from last year to now.He will always be legally blind but it should not worsen.
I am still irritated why did she LIE to me?Both of these appointments are important.Why couldn't she just say they had an opening can we make it at 12 45.Does she realise if i would not have checked in with opthamologist and did a no show I GET CHARGED FOR MISSED APPOINTMENTS. And if ya miss 2 total you cannot return there?So i was worked up about this as i could have been charged and i filed a complaint on that nurse.NOTHING like this will happen again because before i believe them i will call and check
my appointments myself.Its an 1hr 45 minute drive to the hospital would not have been a good thing if i missed an appointment.I have always been very diligent about Landens appointments.
Landen will not need to see them again for a year!I am so happy how much my little boy is growing and was glowing with wonderful news from Nuero and Optho.